Catbrat Posted November 6, 2022 Report Share Posted November 6, 2022 I think you may be better off locating a doctor that specializes in pots. The physician I am treating with only sees patients with pots/dysauntonomia. He is in Sicklerville New Jersy, but his patients come from as far as New England to see him. He started my testing and treatment upon my first visit. Try googling pots/ dysauntonomia specialist near me and see what comes up. Maybe instead of moving, you could travel to see specialist. Quote Link to comment Share on other sites More sharing options...
RecipeForDisaster Posted November 6, 2022 Report Share Posted November 6, 2022 11 hours ago, Sarah Tee said: Oh, I really hope it does help eventually. Do you have have it at Dr Novak’s clinic, or can you have it at your local hospital if you are not near Brigham? I hope it’s not too gruelling to access. I am still puddling away in Australia trying to get my basic saline infusions, which were ordered in February. I’m about 2 hours from Brigham. I get IVIG at home, though. It’s much better that way. It was a lot of work to set up and took months. Plus, it’s extremely expensive. It took me forever to get my IV fluids set up, but I am good now, and have lots of them on hand. I’m so grateful for that safety net. Quote Link to comment Share on other sites More sharing options...
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