Catbrat
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I have found answers since this was posted. I found some answers from You tube, from someone who was able to find a treatment that worked. It was gas x. It did the job for my severe nausea. As for the legs issue my pots specialist gave me medication to help with the tired,achy, heavy feeling. I haven't tried it yet, but will post name of meds and how it works after I have used it. Maybe it could help someone else.
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I have pots as well as gastroparesis, I am nauseated all the time. I take dramine like tick tacks. I also use Pepsi as it seems to settle my stomach better than ginger ale. I have tried ginger chews, pepto bismuth, zofran. Has any one else gad thus issue and found something that helped? Also every time it rains my legs are so achy, heavy and painful.
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Hi, Torturedsoul, I have weakness and heaviness in my legs that I notice is associated with the weather. When it rains my symptoms are more prevelant, although it can come about if I do a lot of walking, especially on cement floors. These symptoms are related to my P.O.T.S.
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Amazon has urgent medical alert cards for dysautonomia patients. It states symptoms as well as needs. It's also has emergency contact information.
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I have not heard of this book. I am ordering it. Thank you very much for your response. Knowledge is power.
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I think you may be better off locating a doctor that specializes in pots. The physician I am treating with only sees patients with pots/dysauntonomia. He is in Sicklerville New Jersy, but his patients come from as far as New England to see him. He started my testing and treatment upon my first visit. Try googling pots/ dysauntonomia specialist near me and see what comes up. Maybe instead of moving, you could travel to see specialist.
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My pots specialist wants me to exercise, he says the rowing machine will work wonders for pots. My advise is to confer with your specialist for the best recommendation.
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Just officially diagnosed POTS - both celebrating and grieving
Catbrat replied to Den's topic in Dysautonomia Discussion
Hi Den, I am sure you will find plenty of support here. I completely understand, getting the diagnosis is bitter sweet. First you have a name for your pain, but you now know that you have this horrible condition. Just knowing that you are not alone in this battle helps a great deal, and having a specialist who is on point with this condition is key. -
I was just thinking for October to be P.o.t.s. awareness month I haven't heard or seen anything, any where. I have run into multiple doctors who have never heard of p.o.t.s.,which is why so many people go untreated for years. There needs to be more done to get the word out.
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Hi Bailee, I have the same symptoms, and I found out from my specialist that it's gastroparesis. Your food is not moving through your intestines, so you have nothing to put out. I would feel full,bloated, and unable to eat. If the food that's in your intestines stays to long, your body will get rid of it, and you get diarrhea. Try eating small meals, no raw vegetables, no raw fruit. I used miralax daily. Consult a gastroenterologist.
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I have found that my legs feel heavy,and tired,and achy after sitting for extended periods of time and or walking for extended periods of time. I would suggest seeing a pots specialist to determine specific type. When I saw my specialist for initial visit there was a lot of paper work and question,your answers to the questions about your symptoms help determine which test you need to diagnose your type.
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@keeponit33 My episodes or flares which ever you prefer. My first full episode occurred last year after I have a disc replaced in my neck.it lasted 4 month, the next full episode was April of this year and it also lasted 4-5 months. Both times I was bed bound the whole time.
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I have these, I call them sweat fest.i wake up with them and I have them random times through out the day. They wake me up though out the night, then I am wide awake. Looking at the ceiling like it's the middle of the day.