Heartbroken Posted January 4, 2022 Report Share Posted January 4, 2022 Happy new year to each one of you. Just wondering if you guys have Hypermobility, EDS or any other type of connective tissue disorder. Recently I have been diagnosed with Hypermobility (after six decades) and my geneticist is testing me for Loeys-Dietz syndrome (LDS). Good luck to all. Quote Link to comment Share on other sites More sharing options...
DizzyGirls Posted January 5, 2022 Report Share Posted January 5, 2022 Both of my daughters have hEDS. Autoimmune things run in our family, as well. Quote Link to comment Share on other sites More sharing options...
Sushi Posted January 5, 2022 Report Share Posted January 5, 2022 On 1/4/2022 at 9:36 AM, Heartbroken said: Happy new year to each one of you. Just wondering if you guys have Hypermobility, EDS or any other type of connective tissue disorder. Recently I have been diagnosed with Hypermobility (after six decades) and my geneticist is testing me for Loeys-Dietz syndrome (LDS). Good luck to all. Yes, I have hEDS. They are looking for the immune signature right now I believe this is one of the few types of EDS where they haven’t discovered it yet. Off to the physical therapist today to get relieve from EDS based pain. I had a mitral valve prolapse which is more common in EDS patients and it was fine with only trace regurgitation for decades…then the regurgitation increased to severe and I had to have it repaired—minor procedure done though a vein. Just a possibility to be aware of. Quote Link to comment Share on other sites More sharing options...
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