hbuhbuhb Posted January 25, 2021 Report Share Posted January 25, 2021 any other pots patients have ed despite being healthy? also does anyone else feel better after a sauna session and worse in cold or with vasoconstrictors/stimulants? Quote Link to comment Share on other sites More sharing options...
appoi789 Posted January 25, 2021 Report Share Posted January 25, 2021 I have ED but my libido is still the same. Quote Link to comment Share on other sites More sharing options...
hbuhbuhb Posted January 25, 2021 Author Report Share Posted January 25, 2021 3 hours ago, appoi789 said: I have ED but my libido is still the same. Curious what medication supplements and therapies have worked for you? For me zyrtec, N-Acetyl Cysteine, Alpha-lipoic acid, and iron and the sauna have been the only thing that helps Quote Link to comment Share on other sites More sharing options...
MTRJ75 Posted January 25, 2021 Report Share Posted January 25, 2021 I did a few infrared sauna sessions and threw up after each one. I assume it's the same reason I have major issues after showers. I think extreme changes in temp/humidity get me either way. Glad it helps you though. Quote Link to comment Share on other sites More sharing options...
LTCBL Posted September 20, 2022 Report Share Posted September 20, 2022 (edited) On 1/25/2021 at 10:41 AM, hbuhbuhb said: Curious what medication supplements and therapies have worked for you? For me zyrtec, N-Acetyl Cysteine, Alpha-lipoic acid, and iron and the sauna have been the only thing that helps Edited September 20, 2022 by LTCBL I am asking the question about use of zyrtec, N-Acetyl Cysteine Alpha-lipoic acid and iron as I did not suggest this and would like to know more about this suggested "treatment" Quote Link to comment Share on other sites More sharing options...
LTCBL Posted September 20, 2022 Report Share Posted September 20, 2022 Has anyone had success with addressing erectile dysfunction? Quote Link to comment Share on other sites More sharing options...
Abadehho Posted March 5 Report Share Posted March 5 Regarding the use of sauna and heat therapy, many POTS patients report experiencing relief from symptoms such as lightheadedness and fatigue after a sauna session. Quote Link to comment Share on other sites More sharing options...
Bevebubby Posted March 5 Report Share Posted March 5 I know that heat can help dilate blood vessels and improve blood flow, which may alleviate some of the symptoms associated with dysautonomia. Conversely, exposure to cold or vasoconstrictors/stimulants can exacerbate symptoms by further constricting blood vessels and potentially worsening circulation. In terms of ED management, while Viagra is a commonly prescribed medication for erectile dysfunction and may provide relief for some individuals, it's essential to consult with a healthcare provider before starting any medication regimen. However, its effectiveness and suitability can vary depending on individual circumstances and underlying health conditions. Quote Link to comment Share on other sites More sharing options...
MomtoGiuliana Posted March 5 Report Share Posted March 5 From my knowledge, many POTS patients do not do well in heat bc the vasodilation increases symptoms. Some patients take midrodrine which causes blood vessels to constrict, improving symptoms. I know that I do not tolerate hot/warm showers when I am in a flare--and typically feel faint during and after showering (for example). But it is also true that with dysautonomia there is rarely a one size fits all approach. Quote Link to comment Share on other sites More sharing options...
SheilaB Posted March 5 Report Share Posted March 5 Cold (just feeling cold - not necessarily being in a cold place) sends me into fight, flight, freeze mode. Panic, can’t think, very reactive. Quote Link to comment Share on other sites More sharing options...
kaevne Posted March 5 Report Share Posted March 5 I'm on midodrine and I've had PCPs tell me that while ED is not officially on symptoms, but 100% I feel that it causes it. My PCP said she can see it having an affect just based on how midodrine works. The half-life of midodrine is around 6 hours, I believe. The dropoff on affecting ED feels like within the first 2 hours, no matter how much you want it, it's impossible to keep it up and going. Don't know, just my 2c and I'm really glad other men on this forum are seeing the same issue so I'm not crazy. Quote Link to comment Share on other sites More sharing options...
MaineDoug Posted March 7 Report Share Posted March 7 Dysautonomia certainly can affect the erectile mechanism.It has caused my ED. But it’s no match for Viagra/Sudenafil, thank goodness! I’ve lost enough function already! Cold makes me feel ill, shivering. But Heat is worse for me, sweating, flushing, pre syncope, confusion, increasing HR and BP. Fortunately I live in Maine, but I’m still in air conditioning anytime it’s over 70 F. Quote Link to comment Share on other sites More sharing options...
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