persephone Posted August 17, 2005 Report Share Posted August 17, 2005 Hi to everyone, sorry I've not been about for ages.Last Friday I was rushed to hospital with chest pain which was stopping me from breathing- it was totally different in itds intensity to other POTS pains i've had before.My GP put me on Oxygen for 90 minutes which helped but dind't make the pain go away, so he sent me back to the cardiologist at the local hospital- the one who Prof Mathias thinks should treat me- but who Prof Mathias has never actually entered into any correspondence with at all.I've been there for 5 days. My TNI was up from 0.03 to 0.05. The pain shot down my arms and up my throat, was like pressure between my chest and back.I wasn't put on a monitored bed this time. Had an echo which was ok. Wasn't given any meds except anti vomiting stuff as the pain made me puke.By the way- any of you ever try cyclizine? It had me high as a KITE! I was off my NUT. I was seeing black angels out side the window! Anyway, yes, so after 5 days, I've been told:a) Some people get chest pain, we can't explain it Why panic about POTS- some people have a sore leg and limp. They don't cry when their leg hurts. Or when they limp. Why don't you cope better with the pots.And c) Nothing the cardio can do til Prof Mathias tells him how to treat POTS, as hes never had another patient with it EVER and doesn't want to do stuff that might harm me.I don't know whoI'm angrier withThe ideas of some people miff me as well- the old ladies in my ward were lovely- I always get on with old people, but one middle aged woman was in and she was like "so, what's wrong with you then, is it M.E?" ARRRRRRRRRRRRRRRRRRGH!I just cried when I came out, nad now don't know what to do.I was meant to be going to St Andrews last saturday to see my mates and celebrate the funding coming through from the British Academy. Fat chance- have lost the flights, $200/?100 as I couldn't get insured...so my mates are all partying and I'm stuck down here out of pocket, out of breath, out of ideas!Any feedback appreciated Quote Link to comment Share on other sites More sharing options...
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