Dysautonomia Conference 2020

[MTRJ75]

I'm continuing to roll through these with the neuropathy talk this weekend. 

I'm a bit confused about one of his more controversial points during the presentation. 

He said that diabetic cardiac autonomic neuropathy led to worse outcomes than other types of autonomic neuropathy without underlying disease. Even after later clarifying, I don't know that he differentiated between different types of AI caused autonomic neuropathy. For instance, if my Sjogren's is the cause of autonomic neuropathy, is that the same thing? Because every time I've tried to research cardiac autonomic neuropathy, all the treatments center around glucose control. 

[Pistol]

@MTRJ75 - CAN ( cardiac autonomic neuropathy ) is ONE cause of dysautonomia, and can include POTS. It is commonly caused by Diabetes, and blood glucose level control can stop the progression of the disease. Neuropathy is a common complication of Diabetes. 

9 hours ago, MTRJ75 said:

He said that diabetic cardiac autonomic neuropathy led to worse outcomes than other types of autonomic neuropathy without underlying disease. Even after later clarifying, I don't know that he differentiated between different types of AI caused autonomic neuropathy.

The following website had this to say: 

Cardiac Autonomic Neuropathy | AutonomicDysfunction.com

 " In a review of several epidemiological studies among individuals with diabetes, the 5-year mortality rate is five times higher for individuals with cardiac autonomic neuropathy than for individuals without CAN. The stronger association observed in studies defining cardiovascular autonomic neuropathy by the presence of two or more abnormalities may be due to more severe autonomic dysfunction in these patients or a higher frequency of other co-morbid complications that contributed to their higher mortality risk. "

[MTRJ75]

Thanks @PistolI got a lot of that too from my reading, but it sounded that the way they explained it was the above may only apply in the context of Diabetic CAN. I can't find anything about mortality or treatment for other AI caused CAN. My neurologist uses Autonomic Neuropathy and Autonomic Dysfunction almost interchangeably, though I know they're not the same thing. 

Is this something I need to pursue a bit more aggressively with doctors? This has always been my chief concern with this constant chest discomfort. Though I can't explain the feeling, I know my heart beats differently than it used to. It's very uncomfortable even when the PVCs are less aggressive. This has always been my concern with all of this. 

 

[Pistol]

@MTRJ75 - Autonomic Dysfunction is essentially the same term as Dysautonomia, meaning abnormal ANS. Autonomic neuropathy is ONE condition that causes autonomic dysfunction. So as far as I know they are NOT the same thing. But a specialist may disagree with that.