firewatcher Posted June 1, 2019 Report Share Posted June 1, 2019 I have a prescription for Emgality for migraine. It is one of the CGRP antibody injections. Has anyone with POTS tried it? What have been your experiences and side effects? Quote Link to comment Share on other sites More sharing options...
p8d Posted June 3, 2019 Report Share Posted June 3, 2019 Please let us know how you do on it. As the weather warms up my migraines are getting worse. Quote Link to comment Share on other sites More sharing options...
handmadebyemy Posted June 24, 2019 Report Share Posted June 24, 2019 I just got a prescription for Aimovig today. I'm wondering the same thing. Did you try it yet? Quote Link to comment Share on other sites More sharing options...
firewatcher Posted June 25, 2019 Author Report Share Posted June 25, 2019 I started Emgality. The only side effect was bruising and pain at the injection sites (which was not bad at all.) I did not get fatigue afterwards. However, I still have menstrual migraine kicking my butt, but it is only the first dose, so maybe it will get better. Quote Link to comment Share on other sites More sharing options...
itsjessmay Posted December 5, 2019 Report Share Posted December 5, 2019 I have PoTS EDS and Chronic Migraines with aura. I started taking Aimovig about a year ago and it was awesome. Migraines cut down from almost daily to 3/4 a month. Botox had stopped working after almost 2 years and other meds tried had terrible side effects. No noticeable side effects at first with Aimovig, but slowly my hair started coming out in bigger and bigger chunks. Ive lost about half my thickness and thin to begin with so that's a huge negative. Doc says its not a noted side effect but you can find many forums online of people with similar experience. As far as PoTS, it didn't effect me like most meds do, which was great besides the hair loss. The injection is not bad, like a pinch for a few seconds. I am super sensitive to meds and most send me into a crazy PoTS flare, so its heartbreaking I might have to stop this to prevent further baldness. I hope this helps. Quote Link to comment Share on other sites More sharing options...
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