itsjessmay

I have PoTS EDS and Chronic Migraines with aura. I started taking Aimovig about a year ago and it was awesome. Migraines cut down from almost daily to 3/4 a month. Botox had stopped working after almost 2 years and other meds tried had terrible side effects. No noticeable side effects at first with Aimovig, but slowly my hair started coming out in bigger and bigger chunks. Ive lost about half my thickness and thin to begin with so that's a huge negative. Doc says its not a noted side effect but you can find many forums online of people with similar experience. As far as PoTS, it didn't effect me like most meds do, which was great besides the hair loss. The injection is not bad, like a pinch for a few seconds. I am super sensitive to meds and most send me into a crazy PoTS flare, so its heartbreaking I might have to stop this to prevent further baldness. I hope this helps.