Stark Posted March 27, 2019 Report Share Posted March 27, 2019 I've been getting chills on and off throughout the day for a few weeks now. It is different from my normal temp intolerance - I will feel a distinct, sudden chill and then my arms will be covered in goosebumps. The feeling can last quite a while and trying to warm up isn't very effective. It often seems to be triggered by eating. Does this happen to anyone else? Could it be MCAS related? Quote Link to comment Share on other sites More sharing options...
Pistol Posted March 28, 2019 Report Share Posted March 28, 2019 @Stark - I am not sure if this is what is causing your symptoms but in my case I get these chills when I am presyncopal, right before a faint. I was told that it is caused by excessive vasoconstriction. If it happens after you eat I wonder if this could be sympathetic over-compensation? When we eat all the blood goes to the digestive system and when the ANS malfunctions this could trigger the sympathetic system to cause excessive vasoconstriction . Chills are a symptom of this. Quote Link to comment Share on other sites More sharing options...
firewatcher Posted March 30, 2019 Report Share Posted March 30, 2019 I have had this frequently in the past. I have had goosebumps in a hot shower, washing dishes and while working out. It isn't a chill, it is an ANS response, because my pupils will dilate (someone saw it and asked if I was OK) at the same time and sometimes my whole body will start shaking. It happened frequently when I was changing meds for migraine prevention. I assumed it was like the "threatened cat" response if you've ever seen a cat about to attack. I have no idea if it means anything except that if it only happens on one side, it is likely a seizure (according to an episode of House, MD.) Quote Link to comment Share on other sites More sharing options...
katcanny Posted March 31, 2019 Report Share Posted March 31, 2019 I get chills/pins and needles sensation all the time for no reason at all, in different parts of my body. This has happened for the past nearly three years since I was diagnosed. I get them in my arms, in my back, in my buttocks, in the back of my head it’s an odd feeling but I can get it laying down too so I don’t think it has anything to do with orthostatic intolerance? It remains a mystery to myself I have never bothered to ask a doctor because half the time I have that many symptoms the doctor gets overwhelmed so I just go with the worst symptoms Quote Link to comment Share on other sites More sharing options...
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