Guest KiminOrlando Posted March 17, 2019 Report Share Posted March 17, 2019 Anybody have improvements of digestive issues with valium? I took some yesterday with interesting results. Quote Link to comment Share on other sites More sharing options...
bombsh3ll Posted March 18, 2019 Report Share Posted March 18, 2019 It helps me with nausea although that's not the primary reason I take it. Doesn't help with motility. What effects did you get? Valium is my favourite med as it helps dampen the chest pain and horrible non-psychogenic sense of anxiety. It also calms my BP spikes as I cannot take BP lowering meds. B x Quote Link to comment Share on other sites More sharing options...
Guest KiminOrlando Posted March 18, 2019 Report Share Posted March 18, 2019 I went from constipation and feeling spasms to no spasms and regular movements. It only lasted about 24 hours, but it was nice. It had been so long I had forgotten what 'normal' felt like. My stomach didn't hurt. My muscles settled down. They suspect that I have small fiber neuropathy but I didn't feel that crampy feeling. It was almost like total relief. Quote Link to comment Share on other sites More sharing options...
bombsh3ll Posted March 19, 2019 Report Share Posted March 19, 2019 21 hours ago, KiminOrlando said: I went from constipation and feeling spasms to no spasms and regular movements. It only lasted about 24 hours, but it was nice. It had been so long I had forgotten what 'normal' felt like. My stomach didn't hurt. My muscles settled down. They suspect that I have small fiber neuropathy but I didn't feel that crampy feeling. It was almost like total relief. A normal BM is something to be celebrated for sure! B xxx Quote Link to comment Share on other sites More sharing options...
JimL Posted March 19, 2019 Report Share Posted March 19, 2019 1 minute ago, bombsh3ll said: A normal BM is something to be celebrated for sure! B xxx What's that like? My GI has slowed down and takes more effort to get out even if it doesn't look like it should. Quote Link to comment Share on other sites More sharing options...
bombsh3ll Posted March 19, 2019 Report Share Posted March 19, 2019 39 minutes ago, JimL said: What's that like? Bliss! I take movicol, magnesium citrate, bisacodyl and glycerine suppositories as needed. The latter are little miracle workers. My son had to get one yesterday & he was a different child afterwards 😊. I have EDS & I had bowel probs my whole life though long before POTS. B x Quote Link to comment Share on other sites More sharing options...
Guest KiminOrlando Posted March 19, 2019 Report Share Posted March 19, 2019 Today I am back to feeling tiny little spasms in my abdomen. It is like I am in a perpetual situp/crunch. All of my muscles are doing it really. I didn't know it until the valium stopped it. The absence of pain was overwhelming. Oh well. Back to real life. Quote Link to comment Share on other sites More sharing options...
JimL Posted March 20, 2019 Report Share Posted March 20, 2019 10 hours ago, bombsh3ll said: Bliss! I take movicol, magnesium citrate, bisacodyl and glycerine suppositories as needed. The latter are little miracle workers. My son had to get one yesterday & he was a different child afterwards 😊. I have EDS & I had bowel probs my whole life though long before POTS. B x After my spine surgery last October my bowels seemed to slow down a lot and never got better. Quote Link to comment Share on other sites More sharing options...
bombsh3ll Posted March 20, 2019 Report Share Posted March 20, 2019 6 hours ago, JimL said: After my spine surgery last October my bowels seemed to slow down a lot and never got better. Are you still on opioid painkillers that are affecting things? It could also be that you're less mobile due to POTS which doesn't help the bowels. When I first got POTS my GI system seemed to get much worse at the same time, I was worried I had gastroparesis. However I have since come to the conclusion that for me the nausea is related to chronic cerebral hypoperfusion/presyncope - nausea is a common symptom of people about to faint - & the slowed transit & hard stools due to immobility and dehydration due to polyuria. At least with the bowel side of things unlike the orthostatic issues there are a range of effective medications that can help. Do you take anything currently? B x Quote Link to comment Share on other sites More sharing options...
JimL Posted March 20, 2019 Report Share Posted March 20, 2019 1 hour ago, bombsh3ll said: Are you still on opioid painkillers that are affecting things? It could also be that you're less mobile due to POTS which doesn't help the bowels. When I first got POTS my GI system seemed to get much worse at the same time, I was worried I had gastroparesis. However I have since come to the conclusion that for me the nausea is related to chronic cerebral hypoperfusion/presyncope - nausea is a common symptom of people about to faint - & the slowed transit & hard stools due to immobility and dehydration due to polyuria. At least with the bowel side of things unlike the orthostatic issues there are a range of effective medications that can help. Do you take anything currently? B x I had oxy 2x when I got home and for 3 weeks after just tylenol. I dont take anything for pain now or since. The only meds I am on are synthroid, metoprolol, lisinopril, esomeprosole and sucralfate. I take a multivitamin, vitamin C and D daily. That's it. I did have an issue from the anaestesia in that it slowed my bowels down. They were giving me pill laxitives which were doing nothing or next to nothing. I was really worried because I didn't go in 4 days. I told them to give me magnesium citrate liquid and that did it. Should have done that from the start. They don't listen to patients. Thats the frustration I've come to have most with the medical profession in the last year. Dr William Osler who is considered the father of modern medicine said that if you listen to the patient, they will give you the diagnosis. It's lost on medical professionals today. That said, I haven't been to a POTS specialist yet, I am scheduled for May 21. That's the earliest I could schedule and next week I have more surgery, more cervical fusion. When they did my lower spine, they used Ketamine in addition to the other stuff. I have to wonder if that did something. I had a weird reaction after the surgery, like hallucinating. Never had that before or since. Quote Link to comment Share on other sites More sharing options...
bombsh3ll Posted March 21, 2019 Report Share Posted March 21, 2019 21 hours ago, JimL said: Dr William Osler who is considered the father of modern medicine said that if you listen to the patient, they will give you the diagnosis. It's lost on medical professionals today. I totally agree. I hope I was never the kind of doctor we're all too familiar with (I don't think I was) & I wish I was still able to work. I was only allocated 10 mins for each patient though so at 6 minutes when they're still telling you what they had for breakfast...😉 21 hours ago, JimL said: next week I have more surgery, more cervical fusion. All the best for your surgery! You never know, some people have improved from POTS after cervical fusion. I hope it goes well for you! Make sure you discuss your POTS with the anaesthetist beforehand so they can be aware that your BP and HR may be more labile, and that you are likely to require more IV fluids than the non-POTS patient to keep things stable. B x Quote Link to comment Share on other sites More sharing options...
JimL Posted March 21, 2019 Report Share Posted March 21, 2019 3 hours ago, bombsh3ll said: I totally agree. I hope I was never the kind of doctor we're all too familiar with (I don't think I was) & I wish I was still able to work. I was only allocated 10 mins for each patient though so at 6 minutes when they're still telling you what they had for breakfast...😉 All the best for your surgery! You never know, some people have improved from POTS after cervical fusion. I hope it goes well for you! Make sure you discuss your POTS with the anaesthetist beforehand so they can be aware that your BP and HR may be more labile, and that you are likely to require more IV fluids than the non-POTS patient to keep things stable. B x I have to wonder what the consequences are when metrics and money come before patients/customers? I will tell the anaesthetist for sure. I have my pre-op check up today as well as a pre-surgery consult with the surgeon. I've just felt so crummy lately. It's a travail just going on doctors visits. Quote Link to comment Share on other sites More sharing options...
WinterSown Posted March 21, 2019 Report Share Posted March 21, 2019 Valium is a muscle relaxant and your digestion is helped with muscular contraction. V is my primary sensory overload drug. One milligram is all I need to take the edge off of too much sound or bright light. Ugh. I have to take a pill before I go into a supermarket during busy hours, it helps in crowded restaurants but say no when the waiter asks your drink order. Valium and wine leave you melted under the table. You're also not driving because it will slow your reactions. The biggest help I got for dyssynergia was a script from my EP for Mestinon. We were not using this just for increasing my energy but WOW, it had a wonderful effect on helping me get back to normal. I used a lot of glycerine but I rarely need it anymore. Quote Link to comment Share on other sites More sharing options...
bombsh3ll Posted March 22, 2019 Report Share Posted March 22, 2019 18 hours ago, WinterSown said: The biggest help I got for dyssynergia was a script from my EP for Mestinon. I tried mestinon in the hope it would help my OI, sadly it didn't but it was a decent laxative. I didn't continue with it just for this purpose as I have other laxatives, but for anyone not finding relief with the usual bowel meds it may certainly be worth looking at. It didn't have any side effects for me (and I am very sensitive) so would consider it quite a safe & gentle drug to try. B x Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You can post now and register later. If you have an account, sign in now to post with your account.