Courtney812 Posted February 25, 2019 Report Share Posted February 25, 2019 So i got diagnosed with pots 6 years ago after the birth of my 2nd child. Hr during tilt was in 30s laying and 180s upright. Overtime I improved. And was bedridden for a few months but got better, Had flares but regained a 90% normal life. With no major flare for years. TW: I'm pregnant...for the 2nd time in 1.5 years and I'm so afraid I've broken my nervous system again. I'm not real functional at all. I've elected to end this pregnancy because of the acute symptoms and stress and medicines I'm on. I'm very scared that I won't regain my health.. and I won't be able to enjoy my kids i have and function. I'm afraid pots is back and won't go away again My Pots usually is triggered by stress... Well my grandma died last month and this month im pregnant, I was trying to lose weight to get my tubes tied... so I wouldn't have to make this decision. Can pots go from coming and going to constant? I'm afraid it will.. yes i have some mental health problems.. OCD with aniexty regarding my health and depression. I've been under a huge amount of stress.. can stress just make pots come back and not go away?! Quote Link to comment Share on other sites More sharing options...
Courtney812 Posted February 25, 2019 Author Report Share Posted February 25, 2019 I also got divorced 1.5 years ago, moved.. had to change how I see my kids since their dad has them full time... which is obviously a big stress. Also i had a bad car accident that reversed my neck curve so the amount of stress I been under is large to say the least Quote Link to comment Share on other sites More sharing options...
JimL Posted February 25, 2019 Report Share Posted February 25, 2019 Your resting HR was in the 30's? Wow, that's super low. One thing that might help is cognitive behavioral therapy. It's good to talk to a competent therapist. As far as the neck goes, I've seen a video on how CSF leaks can cause POTS symptoms and problems with cervical spinal cord could cause issues too. That said, if you have adrenal caused pots, I think stress could cause it to flare. A competent doctor familiar with POTS could clarify that. I hope you get better. Quote Link to comment Share on other sites More sharing options...
Courtney812 Posted February 25, 2019 Author Report Share Posted February 25, 2019 I definitely suspected adrenal issues before. I've just had a rough life, full of stress and it seemed that each pregnancy made me pretty sick postpartum and hormones mess with me during ovulation. Any really stressful situation makes me physically sick and I think that's what went on here. The hormones of pregnancy with the pure terror stress of the what if I get worse never get better... I just overloaded my system Quote Link to comment Share on other sites More sharing options...
JimL Posted February 25, 2019 Report Share Posted February 25, 2019 58 minutes ago, Courtney812 said: I definitely suspected adrenal issues before. I've just had a rough life, full of stress and it seemed that each pregnancy made me pretty sick postpartum and hormones mess with me during ovulation. Any really stressful situation makes me physically sick and I think that's what went on here. The hormones of pregnancy with the pure terror stress of the what if I get worse never get better... I just overloaded my system Have they checked the adrenal levels? Usually they can prescribe meds to tone that down. Quote Link to comment Share on other sites More sharing options...
Courtney812 Posted February 25, 2019 Author Report Share Posted February 25, 2019 I honestly had tons of testing between 2013-2014. As i got better..with less severe flares lasting shorter amounts of time, I stopped looking for my why. But in the past 1.5 years I've been thru so much Divorced, moved to a different state , had to leave my kids with their more financially stable dad, fell broke both feet and a wrist, car accident in Dec. 2017, pregnancy, 8 week cold/cough illness, grandma died, pregnant again..and sick again..and tons of stress mixed in there from finances or relationship to just pure depression. I start therapy soon, the cognitive behavior therapy. I started Prozac.. makes my head buzzy. But only been on it a week. Before my POTS was never normal.. my heart rate was very low and very high, my blood pressure was very low, very high and narrow.. it was a mess. GI symptoms the worst part usually but also dizzy, fatigue, brain fog etc. Hormonal surges out the wazoo. I guess if my POTS is back..its at least well deserved considering all I've been thru..and fought thru and lack of distressing. Literally the biggest ball of constant worry/stress ever. I guess that's where the OCD comes into play. I also have aortic and pulmonary regurgitation But... I just of course (who doesn't?) Want to improve again..manage my stress... and move onto longterm health Quote Link to comment Share on other sites More sharing options...
StayAtHomeMom Posted February 26, 2019 Report Share Posted February 26, 2019 Pregnancy and POTS can be unpredictable. Stress can easily cause a flare. Also if you don't have your underlying cause that could be flaring and causing your POTS to flare. curious (you don't have to answer): what medications are you on that would help influence your decision to terminate your pregnancy? I am working on getting my OCD diagnosised. It was always a joke until my boss said I have it (he has experience with it) I find out in the next few weeks if it is or not. Personally I don't think I do (or it is mild) but since it was brought to my attention that things I do are not normal, it made me wonder enough to get it looked at. Hope you feel better soon. Quote Link to comment Share on other sites More sharing options...
Courtney812 Posted February 26, 2019 Author Report Share Posted February 26, 2019 Well the intrusive thoughts wont stop.. And i had a nice 2 day stay in a ward due to suicidal thoughts because of this flare... In which I was told I have OCD... which makes sense. Pregnancy makes my POTS 100x worse.. postpartum....forget about it. I'm mentally in a very rough place due to all kinds of issues lately... with depression and bad OCD and aniexty... which is why im not continuing the pregnancy because it makes me very ill.. And mentally I decline steeply. I'm on Prozac and ativan and a few other things. Quote Link to comment Share on other sites More sharing options...
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