AnewDay Posted February 17, 2019 Report Share Posted February 17, 2019 I've had pots for about eight years now, my worst symptom is the breathing problem that I get sometimes. I'm not going to go into explaining what it's like but it's a living h*** , I wasn't sure if it was a histamine Mast Cell thing that people keep talking about are some kind of a reflex issue I tried everything to make it better incredibly strict diet helps, but what's been a miracle for the last 3 months has been something called zinc carnosine. Apparently the breathing issue I was having most likely was related too inflammatory thing mucous lining thing in the gut possibly autoimmune I don't know.. zinc carnosine helps with gut permeability and mucus along with a lot of other things that may help the autonomic nervous system function better. Like I was saying I was in a living h*** for 7 years off and on and zinc carnosine seems to be helping me quite a bit hopefully it will help others to. https://selfhacked.com/blog/carnosine/ Quote Link to comment Share on other sites More sharing options...
JimL Posted February 17, 2019 Report Share Posted February 17, 2019 One part of the article might make it not a good idea for some of us: Carnosine lowers blood pressure through vasodilation (opening blood vessels). One mechanism by which it achieves this is by increasing nitric oxide production Quote Link to comment Share on other sites More sharing options...
AnewDay Posted February 17, 2019 Author Report Share Posted February 17, 2019 I read that it might in some people lower blood pressure, but I also read it improves the function of the parasympathetic and sympathetic system, I measure my blood pressure daily because I have a drop in blood pressure when I stand and since I've been taking zinc carnosine it's improved a lot so much so that I don't want to jinx it by talking about how much it's improved but it has. Now it could just be because there's less inflammation on my gut so less overall blood pooling and so that could be why I'm seeing orthostatic improvements. I think it's important though to look up everything you can about it because it truly has been a miracle for me personally. The brand I use Doctor's Best PepZin GI, Zinc-L-Carnosine Complex by the way. Quote Link to comment Share on other sites More sharing options...
JimL Posted February 17, 2019 Report Share Posted February 17, 2019 26 minutes ago, AnewDay said: I read that it might in some people lower blood pressure, but I also read it improves the function of the parasympathetic and sympathetic system, I measure my blood pressure daily because I have a drop in blood pressure when I stand and since I've been taking zinc carnosine it's improved a lot so much so that I don't want to jinx it by talking about how much it's improved but it has. Now it could just be because there's less inflammation on my gut so less overall blood pooling and so that could be why I'm seeing orthostatic improvements. I think it's important though to look up everything you can about it because it truly has been a miracle for me personally. The brand I use Doctor's Best PepZin GI, Zinc-L-Carnosine Complex by the way. If it works great. Just wondered about that as a drop in BP could exacerbate it. I wish there were more studies into supplements, but that industry is poorly regulated. Quote Link to comment Share on other sites More sharing options...
AnewDay Posted February 17, 2019 Author Report Share Posted February 17, 2019 there's lots of things people can do and take that in theory May improve nitric oxide and have lowering blood pressure affect, but still vastly improves people's orthostatic symptoms related to low blood pressure are autonomic dysfunction, it just seems counterintuitive but I suspect it'll help. It's helping me and I've been doing it for 3 months anyway good luck God bless Quote Link to comment Share on other sites More sharing options...
Stark Posted February 18, 2019 Report Share Posted February 18, 2019 Interesting. Could you actually describe the breathing issue you were having? I'm curious about if it's similar to what I sometime experience Quote Link to comment Share on other sites More sharing options...
AnewDay Posted February 18, 2019 Author Report Share Posted February 18, 2019 Sometimes it's triggered from eating it just feels like some thing irritating me when I breathe I'm aware of my breath; when I have a flare up and it's bad and I'm trying to sleep it's very very very very bad I'll have to at times make myself breathe consciously. It's very hard to sleep because right when you're about to go to sleep you stop breathing it's very hard to explain. Zinc carnosine has changed my life, my orthostatic intolerance as improved starting to go for walks and run in fact about to go for a jog in a few minutes, I believe my orthostatic intolerance it's caused from an autoimmune condition of some sort related to gut permeability anyway God bless I'll be back in about 2 hours Quote Link to comment Share on other sites More sharing options...
JimL Posted February 18, 2019 Report Share Posted February 18, 2019 32 minutes ago, AnewDay said: Sometimes it's triggered from eating it just feels like some thing irritating me when I breathe I'm aware of my breath; when I have a flare up and it's bad and I'm trying to sleep it's very very very very bad I'll have to at times make myself breathe consciously. It's very hard to sleep because right when you're about to go to sleep you stop breathing it's very hard to explain. Zinc carnosine has changed my life, my orthostatic intolerance as improved starting to go for walks and run in fact about to go for a jog in a few minutes, I believe my orthostatic intolerance it's caused from an autoimmune condition of some sort related to gut permeability anyway God bless I'll be back in about 2 hours I had an H Pylori infection last year that probably wasn't treated well. Things have gotten worse from there. Quote Link to comment Share on other sites More sharing options...
Stark Posted February 18, 2019 Report Share Posted February 18, 2019 51 minutes ago, AnewDay said: Sometimes it's triggered from eating it just feels like some thing irritating me when I breathe I'm aware of my breath; when I have a flare up and it's bad and I'm trying to sleep it's very very very very bad I'll have to at times make myself breathe consciously. It's very hard to sleep because right when you're about to go to sleep you stop breathing it's very hard to explain. Zinc carnosine has changed my life, my orthostatic intolerance as improved starting to go for walks and run in fact about to go for a jog in a few minutes, I believe my orthostatic intolerance it's caused from an autoimmune condition of some sort related to gut permeability anyway God bless I'll be back in about 2 hours That is quite literally exactly what I experience at times. I may have to try this form of zinc Quote Link to comment Share on other sites More sharing options...
AnewDay Posted February 18, 2019 Author Report Share Posted February 18, 2019 1 hour ago, JimL said: I had an H Pylori infection last year that probably wasn't treated well. Things have gotten worse from there. After The Infection and antibiotic treatment Is that about when it started? I think the gut is responsible for a lot of these problems that we have and things like antibiotics can probably throw a wrench into it as well the biome gets thrown off that leads to all kinds of problems to I guess but I'm not a doctor. I think you will get better. Quote Link to comment Share on other sites More sharing options...
AnewDay Posted February 18, 2019 Author Report Share Posted February 18, 2019 53 minutes ago, Stark said: That is quite literally exactly what I experience at times. I may have to try this form of zinc I'm not surprised that are similarities with other people on this board, the breathing thing is even worse the new orthostatic hypotension that I have. But I'm getting better I've been doing a lot of reading about the possible autoimmune causes, and it looks like orthostatic hypotension and postural orthostatic tachycardia syndrome can often be from autoimmune. And the gut is responsible for all of it most of the time I was eating a lot of refined Foods refined sugar crap like that for a long time but I gave it all up . I even gave up Dairy and gluten giving those up help tremendously throughout the years but it wasn't until the zinc carnosine that I've made improvements and got rid of the breathing thing apparently, but I can't go and start eating crap again because it'll trigger flare-ups autoimmune flare-ups so take that on board if you get better don't go back to your old ways and do stuff that'll trigger flare-ups. The brand I buy is called Doctor's Best PepZin GI, Zinc-L-Carnosine Complex, https://www.amazon.com/dp/B0035BYOSA/ref=asc_df_B0035BYOSA5750070?tag=shopz0d-20&ascsubtag=shopzilla_mp_1041-20%3B15504599169114557024810070302008005&creative=395261&creativeASIN=B0035BYOSA&linkCode=asn&th=1 I was reading through all the reviews they had to see what other people are saying abou.t it seems to work quite well for Digestive issues, it can chelate copper out of your body if you take a lot of it but the dosage that help Probably won't be a problem. I don't supplement with copper I just eat a really healthy diet and Foods that have copper and that kind of thing anyway good luck. Quote Link to comment Share on other sites More sharing options...
JimL Posted February 18, 2019 Report Share Posted February 18, 2019 22 minutes ago, AnewDay said: After The Infection and antibiotic treatment Is that about when it started? I think the gut is responsible for a lot of these problems that we have and things like antibiotics can probably throw a wrench into it as well the biome gets thrown off that leads to all kinds of problems to I guess but I'm not a doctor. I think you will get better. The POTS started months later. I have a post with my history in the forum. Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You can post now and register later. If you have an account, sign in now to post with your account.