joiedevivre Posted January 8, 2019 Report Share Posted January 8, 2019 And if you have, what were the results? I'm wondering because I see it mentioned as a treatment on several POTS websilike this one https://myheart.net/pots-syndrome/treatments/ , but I don't know if I ever heard of anyone trying it? I know it's used illegally by athletes, but it doesn't seem inherently more dangerous than other medically administered treatments. Thank you Quote Link to comment Share on other sites More sharing options...
corina Posted January 8, 2019 Report Share Posted January 8, 2019 I didn't try this med but it's on our DINET/What helps list also. I know from the past that (former) members have tried it. Here's a link to our What helps list: Quote Link to comment Share on other sites More sharing options...
joiedevivre Posted January 9, 2019 Author Report Share Posted January 9, 2019 That was a lot of interesting info on erythropoietin, and medication s in general, thank you! One study (by Grubb) even said 80% of study subjects had a great response to it. Quote Link to comment Share on other sites More sharing options...
yogini Posted January 9, 2019 Report Share Posted January 9, 2019 I remember people posting about EPO from time to time on this forum when I first joined 15 years ago. It doesn't come up much anymore. I know a little about EPO because a while back my mom was on it for anemia. After a few years of taking it, the doctor took her off of it after some research re risks was published. So I think it would be important to think through with your doctor. Quote Link to comment Share on other sites More sharing options...
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