WinterSown Posted October 5, 2018 Report Share Posted October 5, 2018 Caregivers are as important a role in our lives as our doctors. They help us throughout our dysautonomic day, week, life. They help us with daily living. Along the way there is a trade-off. Caregivers slowly change how they live to accommodate our needs. What they do and the free time they have slowly ebbs away as they become more involved in our care. October Dysautonomia Awareness always will find praise for doctors and patients; I think it should also highlight the wonderful men and women, our caregivers, who help us keep going forwards. In honor of this special month I would like to invite you all to share a story or kind word about your caregiver(s). Caregiving 101~ On being a caregiver.Caregiving ~ Recognizing BurnoutGifts for Caregivers ~ Wonderful list of ideas. One of the best ways to participate in Dysautonomia Awareness is to let your caretaker know that you are aware of their sacrifices to care for you and that you are thankful. Quote Link to comment Share on other sites More sharing options...
WinterSown Posted October 5, 2018 Author Report Share Posted October 5, 2018 I would like to thank Hubs who lately has been taking too many days off from work to sit with me in my appointments and tell doctors what he's seeing. He's not there to back me up, he's there to provide what I forget 😞 I've become very sound sensitive so he's got his tv down to extra low; he watches sports like he's at the stadium and can't jump up and hoot and holler when his favorite sports team scores--it sets off my symptoms. He gave up his favorite restaurants for more quiet ones. He's ready to retire but may have to keep working a few more years for the insurance. That's a big sacrifice when he worked so hard for that retirement. Today is his birthday, I just realized I forgot to tell him Happy Birthday this morning before he left, sigh, he didn't say anything because he knew I forgot. I've been with this guy for forty years and he still loves me. Thank you Hubs for being there for me so often. Quote Link to comment Share on other sites More sharing options...
Pistol Posted October 5, 2018 Report Share Posted October 5, 2018 Thank you @WinterSown to remind us of our caretaker's sacrifices. I sometimes get so used to my husband accommodating my limitations that I take him for granted. I will share your post with him and thank him from the bottom of my heart! Quote Link to comment Share on other sites More sharing options...
p8d Posted October 6, 2018 Report Share Posted October 6, 2018 Thank you @WinterSown. How lovely to remind us to cherish these hard working people. I would probably be dead without my husband and certainly wouldn’t have had the care I need without him. He does so much with humor and grace and I sometimes forget the sacrifices he makes for me. Quote Link to comment Share on other sites More sharing options...
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