Most prevalent symptoms by POTS type

[Shane]

Going to get my TTT in two weeks, pretty scared as I am essentially stuck in my house with symptoms, I wish I could start some kind of treatment now.

What I don't have: blood pooling in limbs (at least I don't see it), no abdominal pain (minor strange hunger/nausea), brain fog, chest pains,  chronic pain,  no more anxious standing vs. sitting.

What I do have: palps and shortness of breath all the time, fatigue on standing, high change in heart rate sitting to standing, low temperature all day.

Does anyone have these same symptoms and if so what type of POTS were you diagnosed with?

 

[MomtoGiuliana]

Are you drinking more fluids?  That may help.  If you have POTS typically a high fluid and high salt diet is recommended but you should discuss salt with a doctor.  Compression hose could also be tried in the meantime.

The symptoms you describe are typical POTS symptoms.  I think you will find that each of us is somewhat unique in symptoms.  Also it may or may not be helpful to categorize your POTS.  What is most important is to find a treatment that works and this can be some trial and error with a specialist.

 

[Pistol]

@MomtoGiuliana - wise words.  Shane - we ( as well as the medical community ) cannot properly separate the different dysautonomias as of yet. There are certain symptoms shared by certain patients so they put a name to those ( hyper-POTS, neuropathic POTS, partial-dysautonomic POTS etc ) but as of recently they are trying to shy away from such labels because they are just not precise enough. So - if they ( the docs ) cannot agree on what to call it then we should not try to categorize our symptoms either. As MomtoGiuliana so expertly said: it is the treatment that counts, not the label. So - try to find an experienced autonomic specialist and tell them your symptoms and they will - hopefully - be able what treatment might work for your symptoms. Best of luck!!!!!