IV therapy for POTS

[Carlz]

Hi I have POTS, CFS/ME and Fibromyalgia and I’ve recently come across IV saline therapy for POTS and CFS/ME and I’m wondering if anyone knows of any doctors in Adelaide or Melbourne that prescribe IV therapy for POTS. My cardiologist is Reluctant to prescribe it, as he never has before and wants evidence from another doctor that does prescribe it. So I’m wondering if anyone knows of any doctors in Adelaide or Melbourne that do?

[Pistol]

There are several studies available online that address this , check on thedysautonomiaproject.org or google IV therapy for POTS article by Dr Blair Grubb MD. You can show them to your doctor, it might convince him hearing it from autonomic specialists that treat hundreds of patients. I myself benefit greatly from periodic infusions. Best of luck!!

[Carlz]

Hi I’ve done all that and showed him that article, but it’s only from google it’s not a published article and also it’s not an official protocol. he wants to see a proper protocol written from a fellow specialist in Australia, outlining the proper procedure and benefits, so I’m trying to find one that he can contact and get a protocol from. 

 

[merkat30]

been going to A&E at my local hostpital for saline iv when it got to much for me it helps but i also feel very poorly after and during . My mast cells play up awful it does help that and my pots but i seem to get verrry fatigued after it ive been in bed all day feel worse than i did going in very high heart rate not so high though now but rest my body not knows what do with it self palpitations all night high adrenaline surdges was awful . I now wondering why i bothered .normally i get it have good two days after anyone else?also here in england they wont prescribe it so i have go A&E get it they no nothing about dysautomia there so they not to nice .hope u having good spoons day 😊

[Bluebonnet08]

Here's an article published in the peer-reviewed "Journal of Interventional Cardiac Electrophysiology"

The main results from the study were:  The mean change of the OHQ was 3.1 ± 0.3 (95% CI 2.6-3.7; P < 0.001), with significant improvement in all the composite scores.  Intermittent IV infusions of saline dramatically reduce symptoms and improve quality of life in patients suffering from POTS. 

Here is the link for your cardiologist, although I suggest he/she reads the entire study:  https://www.ncbi.nlm.nih.gov/pubmed/28185102

There are actually several studies on it, the Mayo Clinic is currently doing some studies as well.  I find it infuriating that doctor's are willing to withhold this very uncomplicated treatment that has a low rate of side-effects and has extremely beneficial effects for those suffering with POTS.  I don't understand it at all!  

Where I live, we have Hydration Clinics and I can just walk in and get one whenever I need it.  I'm sorry you are having difficulty obtaining a saline IV.  They have helped me a lot with the condition.  I hope your cardiologist will become more educated and helpful.  If not, maybe you can find one who will work with you to treat this horrible condition.  

[Pistol]

You said you doc wants an official protocol for IV saline infusions - I am pretty sure that there is not a protocol in this world about ANY treatment for POTS. I think if your doc is that insecure about treating you it would be best to find another doctor.