Neurologist?

[Emily22]

We’ve seen so many supposed specialists ( paediatricians, 3  cardiologists, rheumatologists, several gastroenterologists) but still trying to get some help for my daughter. She has very bad daily stomach pain, with chronic nausea., slow bowel motility and gastric reflux. We finally found a good cardiologist, who diagnosed POTs and a provisional diagnosis of Supraventricular Tachycardia.  Is it worth seeing a neurologist? What tests can they do?

[DizzyGirls]

I would recommend a neuro GI, preferably one who is knowledgeable about Dysautonomia.  They can do a gastric emptying study to see where the delay is in her digestive system, maybe a Smart Pill, Upper GI endoscopy, etc. 

[WinterSown]

I have the same symptoms.

Perhaps schedule with a local GI to quickly get a handle on what's going on--if there is a hernia, or any damage to her esophagus from excessive vomiting. Dietary changes can help but some OTCs can make the motility worse, you need testing and trial and error to find the right combo of meds and diet to get control of this.

 

[p8d]

My POTS neuro is fantastic.  Much more thorough than my cardiologist.  She diagnosed me.  She ordered all tests, including gastric emptying prior to diagnosis.  She referred me to a POTS conversant GI.

[Christy_D]

My son was diagnosed by a Cardiologist, but has always been treated by a neurologist.  His main symptoms have been GI related, nausea, abdominal pain.  He did have delayed gastric emptying.   If you are near Milwaukee, Dr Gisela Chelimsky (pediatric gastroenterologist) is a great doctor.  She is well versed in POTS.