sydney101 Posted February 28, 2018 Report Share Posted February 28, 2018 My name is Sydney im 20 years old, and ive been diagnosed with POTS I still need to see one of my doctors next month to figure out medication and other aids to help me into feeling better than I do now. Ive been to the ER a few times because of my pots and im not on any medication and no one has given me any advice besides drink more water and increase my salt intake but they don't tell you how much your life changes and im struggling to cope with that. I am sleeping constantly I cant go out for long because im exhausted all of the time I cant walk for long or stand, my blood pressure and heart rate fluctuate's constantly no matter what I do even when I sleep. im having a hard time , family only understands close to nothing and sometimes I feel like I chat their ears off trying to explain. but most of all Im so tired of feeling the way I do 24/7 . ive missed more than a months time of work and I just got diagnosed in December but this has been going on for much longer than that. I just need information on anything that has helped you please and thank you for your time. Quote Link to comment Share on other sites More sharing options...
MomtoGiuliana Posted February 28, 2018 Report Share Posted February 28, 2018 Here is a list of treatments that have been shown to help POTS patients that might be useful to review: https://www.dinet.org/content/information-resources/pots/pots-what-helps-r100/ Quote Link to comment Share on other sites More sharing options...
Pistol Posted February 28, 2018 Report Share Posted February 28, 2018 What helped me to explain my symptoms to my family was the book fro Thedysautonomiaproject.org as well as the letter for patients and caretakers on ndrf.org. Quote Link to comment Share on other sites More sharing options...
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