SammyJo Posted September 14, 2017 Report Share Posted September 14, 2017 So my last post I had discussed weird psychological symptoms from fludrocortisone. They got so bad I called my doctors nurse line, which had no answer bc of the hurricanes etc. I decided to take a half the next day, and started having burning sensations(neurological) in my head, neck, and arms. So the following day I just didn't take it at all because I was so scared. I still had no reply from my doctor or his nurse so I called the local pharmacist and he said to absolutely not stop it like that because it is dangerous and I would have to continue taking half a few days, then a quarter a dew days etc. I now have shallow slow breathing, but I think it is from deconditioning and having to sit and not walk around while I deal with this medicine. This weird sensation like I'm on fire and someone is blowing cold air on the fire really freaks me out. I know it will go away once I am finally off the medicine but the sensation is kind of spreading to my chest (almost like that feeling when you get contrast for a CT and you feel the burn down your body). I don't know if all these symptoms are more dangerous than going off the medication abruptly would be. Obviously that is a question for my doctor if he ever gets back to me but I just wanted to share my concern. I really want off of this medication and I regret not reading into it before I started. I was just really excited to try something new to help everything else, now I'm just putting my body through more crap taking 10 steps back. Sorry to be so negative guys, but this stinks. Quote Link to comment Share on other sites More sharing options...
corina Posted September 14, 2017 Report Share Posted September 14, 2017 So sorry you are experiencing these problems. I hope your doctor will come back to you soon, if not you may want to try call again in case you are really worried/scared. Sending good thoughts! Quote Link to comment Share on other sites More sharing options...
yogini Posted September 17, 2017 Report Share Posted September 17, 2017 It takes about one month to get adjusted to flornief. If there was a hurricane, it would affect your POTS a lot and I wouldn't assume it was the florinef making you sick. I am generally healthy now. I feel a rainstorm a day or two before. Can't imagine a hurricane. Hope you are safe! Quote Link to comment Share on other sites More sharing options...
SammyJo Posted September 17, 2017 Author Report Share Posted September 17, 2017 These issues were neurological in origin, a hurricane would not cause my skin to feel like it is on fire. I am off of this medication and already feel better. There are still some lingering side effects from it, but it takes a while for steroids to leave your body. Worst reaction to a medication I have ever had. Quote Link to comment Share on other sites More sharing options...
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