sparkle73 Posted August 6, 2017 Report Share Posted August 6, 2017 Hi my name is Edwina, just joined yesterday and so happy to be here! I was released from the hospital about two weeks ago after fainting a number of times, they told me I had vasovagal and after explaining what it was, I was at first in shock and after it hit me I had this inner feeling that my life would never be the same. Still learning and it is such a welcome release to connect with others here who are also experiencing this condition. I was also told months prior to this news about the vasovagal, that I had a inner ear condition unilateral weakness on the right side which was causing a lot of dizziness, now with this added I am double dizzy and can't stop my world from spinning... not sure it's safe to continue the same exercise I was doing with the inner ear (brandt daroff) with vasovagal and would welcome any suggestions, thanks! Quote Link to comment Share on other sites More sharing options...
MomtoGiuliana Posted August 8, 2017 Report Share Posted August 8, 2017 Hello and welcome to the forum. I am not sure if this is the same diagnosis as NCS however here are some resources for NCS that may be helpful if you have not seen this: https://www.dinet.org/content/information-resources/ncs/ Quote Link to comment Share on other sites More sharing options...
sparkle73 Posted August 8, 2017 Author Report Share Posted August 8, 2017 Thanks for the welcome and yes this information and the links were very helpful, thanks again.. Quote Link to comment Share on other sites More sharing options...
Clb75 Posted August 9, 2017 Report Share Posted August 9, 2017 I was diagnosed with NCS and Pots, and fainted a lot at the beginning. Once I started taking Florinef and increasing fluids and salt, it got better. I tried to lower my florinef dose several months ago and passed out again, so I know it's definitely helping. Hopefully you'll find something that works. Quote Link to comment Share on other sites More sharing options...
sparkle73 Posted August 10, 2017 Author Report Share Posted August 10, 2017 So happy to hear this is working for you, I will discuss these options with my doctor and see if there is also hope for me too. Thanks for sharing, not fun being sick Quote Link to comment Share on other sites More sharing options...
jvherenow Posted September 7, 2017 Report Share Posted September 7, 2017 HI Sparkle 73, are you looking for ways to keep exercising? If your doctor has cleared it, you could try recumbent bike or lying down exercises (basically anything you can do on the floor, face up or face down. Don't give up! Exercise has a major long-term benefit for dysautonomia...it really helps the nervous system regulate itself. Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You can post now and register later. If you have an account, sign in now to post with your account.