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An excellent visit!!!


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I just got back from my appointment with my doctor at Winthrop Cardio Vascular in Garden City, NY. He's a completely understanding, kind, listening, uplifting fellow. He let me talk, and he let me talk, and he let me talk some more and we even talked about patient advocacy--what joy! OMG, after so long to get a diagnosis it's nice to know someone so compassionate is caring for me. His partner diagnosed me earlier this year after I did not faint with the TTT, but his partner also had listened and asked the right questions. Win.

We made some tweaks to my maintenance: more magnesium via soaks and vitamins, I'm to drink kefir with each meal and eat at least five meals a day(!) to help with my lightheadedness and digestive tract issues; and he suggested a treatment he just heard about (he says no guarantees yet how it will help) but I can make a paste with water and epsom salts and use it like a face and neck scrub. He said it will be good for my skin too. WCV also  changed my neuro appointment. I'm going in two weeks instead of six as I am tripping again but we'll get that managed.

This is the first time in a long time I came back from one of my specialists feeling very happy for the visit.. Usually I am bummed, not this time. Joy.

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Guest KiminOrlando

That explains a lot. I find that doctors who have had to be patients (cancer, lupus) or have close family who are patients are also very good.

Add this one to our physician's list. We've got another one!

:D

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1 hour ago, KiminOrlando said:

That explains a lot. I find that doctors who have had to be patients (cancer, lupus) or have close family who are patients are also very good.

Add this one to our physician's list. We've got another one!

:D

Good idea. I told him Winthrop should create a Dysautonomia Clinic. He siad I would have to bring that up with the 'third floor'. I suppose that's their business office. 

 

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