AJVDK Posted July 3, 2005 Report Share Posted July 3, 2005 Hello, tonight it the first time here! After 6 years of going to doctors, 2 heart surgerys, and a pacemaker put in, I found out I have had POTS all this time, I have been all over the midwest from trying to find out what's was wrong with me. I find out all along it was POTS. Now I been told that it going to be hard to treat as everything they have already done to my heart. Two weeks ago, they started me on, bupropion, potassium, midodrine, and theophylline er. The 1st week on these I felt great. I had more get up and go than I have had in a long time. I have been so tired for so long I couldn't beleive how good I felt, till this monday here I was taked to the ER. My heart was racing so much, and I couldn't breath. I have never flet this bad. THey gave me some IV fliuds and meds and then I came home. On tuesday I went to my family doctor, who listen to my heart and took an EKG and my heart was out of rhtyem. So he called my Doctor at the U of I and they say to stop taking the durgs. Then with 24 hours my blood prusser was so low I was starting to passout. On Friday I did pass out. So I called them back and they are starting me back on the theophylline to see how I do on the alone. I am just tired and sick of not being able to keep up with my 3 year old son. I have not been to work since Monday, and they are trying to work with me, but in the last year I have already been off over 8 weeks with all the sick leave, I can't lose my job it carries my medical insurance. I am just looking for support, trying to find others that know how I feel, and any one with ideas in any way to hope. I am so gald there is a place like this to come! Quote Link to comment Share on other sites More sharing options...
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