Stephanieann Posted September 29, 2016 Report Share Posted September 29, 2016 My Pots started in second pregnancy ( but I think I had it as a teen and also flared after my first pregnancy). Anyway, my neurological symptoms didn't start until after my c section. My pots also got worse. That was three months ago and since then, my neuropathy feelings spread all over my body. EMG normal. Haven't been officially diagnosed with SFN. A bunch of things I can test for yet but this progression seems awful quick to me? Quote Link to comment Share on other sites More sharing options...
momandmore Posted September 30, 2016 Report Share Posted September 30, 2016 Have you had your B12 tested? I have a history of my B12 getting low, which could be partly due to impaired digestion. I also had lots of nervybissues after pregnancy, but I never had a C section. It's amazing to see how quickly those nervy things got better after supplementation. If I could only get it through my head that I have to keep taking B12, I'd be a lot better off. I'be also had twitches of all kinds and palpitations improve drastically with magnesium supplementation. No mega doses or special formulations necessary with either of these, just anything you can find at your local discount or drug store, Vitacost, Amazon, whatever. Quote Link to comment Share on other sites More sharing options...
Stephanieann Posted September 30, 2016 Author Report Share Posted September 30, 2016 Thanks for the tips! All my labs always come back normal. I get so frustrated because I want them to find something. I am taking a different b12 test tomorrow that's supposed to be more accurate, so we will see! Quote Link to comment Share on other sites More sharing options...
Roxy Posted September 30, 2016 Report Share Posted September 30, 2016 A lot of my tests come back normal but in the high or low range of "normal" and a couple of my doctors have said that the normal medical ranges may not be my normal range. It has been a lot of trial and error to find out what works and what my normal is. Good luck with the new b12 test. Quote Link to comment Share on other sites More sharing options...
momandmore Posted September 30, 2016 Report Share Posted September 30, 2016 I think Roxy is right. US normal is not the same in Japan for example. Quote Link to comment Share on other sites More sharing options...
Stephanieann Posted September 30, 2016 Author Report Share Posted September 30, 2016 Yes that is true! When I was pregnant my ferritin level was 11 and my midwife said that was fine. My neurologist told me that was horrible, it should be about 50, lol. I was like oh! I guess I need to keep taking my iron pills SO maybe my labs aren't in my normal range! Quote Link to comment Share on other sites More sharing options...
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