Percythetrain Posted September 16, 2016 Report Share Posted September 16, 2016 Hi all I hope you're all doing great. I'm back to having low BP symptoms (sporadically going blind etc) and trouble having conversations because of being out of breath and my heart rate. I saw a neurologist recently, I don't even want to talk about it, he was incredibly arrogant. I couldn't even talk about the majority of my symptoms because pretty much the minute I walked in he had his mind made up that I was anxious. I sure as heck am anxious, but it's not what's causing these symptoms. Just terrible, terrible experience Anyway, I was wondering if anybody here has their heart rate elevate due to talking. Does talking trigger a faster heartbeat? because that's pretty much my main problem. Quote Link to comment Share on other sites More sharing options...
DizzyGirls Posted September 17, 2016 Report Share Posted September 17, 2016 Oh yes! My mom and my daughters all three have this problem. Talking is extremely difficult for them. Just terribly exhausting. Heart rate and just use of energy. My mom has always said that people think if they call on the phone just to chat and see how she is, that that is ok. Should be ok to them because she didn't have to get ready or go anywhere. They don't get it. Neurologists! Ha! Our neurologist told me that I frustrated him! Actually said that to my face. Yes, most of them seem to have this incredible "God" complex. Of course we are all anxious. Wouldn't they be, too, if they had to live with all of this!! Hang in there! Quote Link to comment Share on other sites More sharing options...
Katybug Posted September 17, 2016 Report Share Posted September 17, 2016 Yes, if I'm standing or walking, talking makes my heart rate go even higher and I will get out of breath. Quote Link to comment Share on other sites More sharing options...
statesof Posted September 17, 2016 Report Share Posted September 17, 2016 One autonomic specialist I saw had me start at 120 and say the next multiple of nine backwards as fast as I could (120,108, 96...etc) while he would keep telling me to go quicker. He was taking my pulse the whole time during this, it was a non-scientific way to create a stress situation, but he could tell by doing this that my heart rate could jump very easily. So yes talking, stress, even the littlest things can get my heart rate running - it's like it is very easily reactive. Quote Link to comment Share on other sites More sharing options...
Guest Posted September 19, 2016 Report Share Posted September 19, 2016 Yes, talking definitely makes my heart rate go up. Before I had to go on sick leave, I had a lot of trouble with this at work. I'm high school teacher. I found I really had to pace myself, not say too many words in a sentence, and make sure I didn't try to project my voice too much. Quote Link to comment Share on other sites More sharing options...
Amyschi Posted September 19, 2016 Report Share Posted September 19, 2016 Wow, I am reading all of your posts on this with amazement, but sadness too. For sure, any activity, even mental calculation, as you were saying "states of," is a stressor and can bring symptoms on. if I am having a more symptomatic day, I am even afraid to initiate calls for something necessary to check on, as I am not sure I can finish it without getting real faint. I just plow through and pray to get through it. I think even neurologists don't understand this, and if you try to tell doctors or family, etc, it understandably sounds unbelievable. Sadly, no one can understand just how much this condition can affect a person, down to the most basic activities of daily living. I always say to myself that I am grateful for all the things I don't have, but it is a very limiting and disabling condition to try to function with, isn't it? I honestly don't know how anyone with this condition works or goes to school; I would think it would be almost impossible. I don't think anyone can truly understand unless they have lived with it. It's hard to plan on going out or even starting something like a baking project. I don't know about all of you, but I can change from minute to minute too. I'll think I am doing baseline and pretty good, and "I'm okay and can cook this," and then in the middle have to stop. Just curious if any of you have had a "bubble study" done? I just had this as part of a transcranial Doppler test, and it came back showing that I do have a PFO, which is a patent foramen ovale, or a hole in the heart. They say it doesn't cause these dysautonomia symptoms, but it is another issue with incorrect blood flow, so you have to wonder. I know that they have connected mitral valve prolapse with dysautonomia, so I wonder if there could be a connection with this too. They say one out of four people have this, it is a congenital heart defect, but most will never know they have it unless it causes a stroke. Just curious. Thanks. Quote Link to comment Share on other sites More sharing options...
Katybug Posted September 19, 2016 Report Share Posted September 19, 2016 I had a bubble study last year because they were looking for a PFO. My migraines had progressed and they couldn't figure out why. As a long shot they looked for the PFO wondering g if I was passing microclots to my brain causing the migraines. Thankfully, I do not have a PFO. Quote Link to comment Share on other sites More sharing options...
lewis Posted September 20, 2016 Report Share Posted September 20, 2016 Interesting. I hate talking and now I know why. I haven't talked to my wife on the phone in years. I've never noticed the talking. However I have noticed my heart rate speeds up with every breath in. Not sure if this is normal or not. Sometimes it doesn't speed so my suspicion is it's not normal Quote Link to comment Share on other sites More sharing options...
lewis Posted September 20, 2016 Report Share Posted September 20, 2016 Saw my cardiologist, she said I could use my beta blocker as needed. Quote Link to comment Share on other sites More sharing options...
Amyschi Posted September 21, 2016 Report Share Posted September 21, 2016 Thanks for the response, Katybug. I'm so glad that you don't have it; one less thing to worry about!! I'm sorry about the migraines, though. Oddly, I don't get migraines, but do get severe tension headaches coming from problems with stenosis in the neck. I know migraines are even worse, and feel for all who have them. Wow Lewis, I've never noticed the increase on breathing in, but I'm sure it's possible. I do notice it increase on swallowing or any movement; not necessarily always tachycardia, but more just a pounding of the heart. I think it has to do with the release of adrenaline maybe, in response to just a super-sensitive response on the part of the autonomic nervous system in all of us, but just my guess. I notice you see a cardiologist; I wonder if he/she could confirm that? Interesting that you can take the beta-blocker as needed; I have wondered about that and would prefer not to take it all the time due to side effects. When did he/she advise taking it - at the onset of your tachycardia or before exercise? Good luck with it. Quote Link to comment Share on other sites More sharing options...
Katybug Posted September 22, 2016 Report Share Posted September 22, 2016 Breathing and heart rate are related. If you hyperventilate, it will also force your heart rate up. If you use meditative breathing, you can control your heart rate to some degree. I am able to bring my HR down with meditation which has, on occasion, saved me from passing out at the deli counter. Talking affects your breathing patterns and your oxygen use. Quote Link to comment Share on other sites More sharing options...
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