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Newest members-March 14-21,2016


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Greetings to our newest DINET community members. My sincerest apologies if I've missed anyone 

Flamingo Girl






Although I've only been here for two years, I've learned a lot, not only about my condition but of the determination, caring and knowledgable nature of this community. Support beyond belief!
This forum serves folks from around the world in different time zones. It's great knowing I'm not the only one awake when my family is sleeping and I can't. I'm sure by evening you will see quite a few comments under this post with people saying hello. 
In the meantime if you have any questions let us know. Visit our DINET page and Facebook page as well.
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Thanks everyone. Just to give a little backstory, I was presumed to have POTS while admitted to the ER with heart issues and a "panic attack" which we later found out was due to being severely dehydrated and not eating because of stomach issues in the morning. The hospital recommended to follow up with Neurology at the UW Medical Center for testing. Basically failed the test and now officially diagnosed with POTS.

It's been a struggle these last few months, low energy, high and erratic heart rate. I thought this was all due to anxiety so I've been on Clonazapam for a few months and now that I am diagnosed my doctor prescribed Florinef.  So hopefully this Florinef starts working soon so I can get back to my normal life!

Again, thanks everyone and I'm glad I found this place!

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