Guest Posted January 15, 2016 Report Share Posted January 15, 2016 5 months into pots and experiencing new symptoms. Extreme fatigue my body feels so heavy. I never had This kind of weakness before and it is very hard for me to even sit on an exercise bike unlike before I was able to do it no problem. Leg muscles are burning legs ache just from simply walking around. I am also getting muscle aches in my arms. And what is really bothering me the most is the dizziness. It is off the hook. Before I could handle it because it was just feeling a little dizzy now I feel like it's inside my entire body. It feels like everything is shifting when I move very strange sensation. I never used to get dizzy in bed now I do. Just moving my arms or legs around feels funny or when I go to turn over to my side my head feels awful. I was doing a lot better three weeks ago feeling more stable and then right before Christmas Eve it hit me like a ton of bricks. Heart rate is still high when I stand depending if I take my beta blocker are not. Blood pressure rises when I stand. I don't know if it's a form of hyper adrenergic pots. But it also causes me to have tremors shaky. Anyone else experience this? Quote Link to comment Share on other sites More sharing options...
DizzyGirls Posted January 15, 2016 Report Share Posted January 15, 2016 I know that for my daughters, the holidays (Thanksgiving through New Year's) are a very tough time. The holidays are something that most people enjoy, and they do enjoy them (they love Christmas!), but for the extra excitement and commotion, there is a price. All autonomic symptoms (includes debilitating fatigue, vertigo, tachycardia, etc.) are off the charts and they will be trying to recover for months. Hang in there, hope you feel better soon! Quote Link to comment Share on other sites More sharing options...
navyblue Posted January 15, 2016 Report Share Posted January 15, 2016 All I can say is you're not alone. Hang in there, hopefully things will improve. Quote Link to comment Share on other sites More sharing options...
MomtoGiuliana Posted January 15, 2016 Report Share Posted January 15, 2016 I've experience almost identical symptoms in the past. For me beta blocker, and low dose SSRI helped. Also lots of fluids and salt. In addition, for me, I think I may have done too much lying down--at first without a diagnosis I didn't understand that too much lying down might make things even worse. Hard to find a balance when you feel really poorly as often too much activity makes the symptoms worse, too. Hope you feel better soon. Quote Link to comment Share on other sites More sharing options...
shathaway0811 Posted January 15, 2016 Report Share Posted January 15, 2016 I agree with the too much lying down! I often notice random spikes in symptoms when I've just been vegging out hard core over a weekend. I go to get up and my body can't handle it - I'm assuming because it's regulated to that position and my blood isn't circulating as much. The dizziness and vertigo are exactly what I feel. Quote Link to comment Share on other sites More sharing options...
Kris4444 Posted January 15, 2016 Report Share Posted January 15, 2016 I'm going through all that you've described currently. It's worse than ever before but I think it's because of starting some new medications. Hope you start to feel better soon! Quote Link to comment Share on other sites More sharing options...
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