Faye Posted January 13, 2016 Report Share Posted January 13, 2016 Had my follow up and tho the DR had confirmed it was POTS that day....and changed my meds....we are now on the journey to work on my symptoms and then see about underline cause...if we cab pin it down.Of the 4 cardiologist I seen, he was the only one who wanted to do a TTT....and when I said to him I realize it's not probably a big issue compared to your other heart patients he was so quick to say NO Pots is serious, and we don't want you passing out that could be extremely dangerous if your driving or walking down the stairs or just hit your head...it was just so nice to hear a Dr say don't down play your symptoms, I Take them and you seriously.....It is so sad that even the cardiologist who have heard of POTS don't take it seriously and say just don't stand still or relax....I know it impacts ppl differently and it is still so misunderstood....even so....they should just say it's not my area let's see if we can find someone who can better help with diagnosis and treatment...I know it may be a journey and there will be bad days...I am reading about how they vary and keep us guessing all the time...but for the moment just so excited about someone saying we will figure it out...and wants to hear it all even if it doesn't sound related...and meet regularly until we get there.... Quote Link to comment Share on other sites More sharing options...
Guest ANCY Posted January 13, 2016 Report Share Posted January 13, 2016 So happy for you! Sounds like you have a great dr. I hope you are able to find a cause for your POTS soon. Keep us updated on your journey. Quote Link to comment Share on other sites More sharing options...
sue1234 Posted January 14, 2016 Report Share Posted January 14, 2016 A great doctor is hard to find. Congratulations for one that takes you seriously! Quote Link to comment Share on other sites More sharing options...
Katybug Posted January 14, 2016 Report Share Posted January 14, 2016 That's great, Faye! Quote Link to comment Share on other sites More sharing options...
dancer65 Posted January 14, 2016 Report Share Posted January 14, 2016 Great news really happy for you ! Quote Link to comment Share on other sites More sharing options...
Faye Posted January 14, 2016 Author Report Share Posted January 14, 2016 Thank you for sharing my happy moment!!!! Only you all understand how having a medical expert willing to work to help and believe you need treatment or some plan to have better days Quote Link to comment Share on other sites More sharing options...
sideofsalt Posted January 14, 2016 Report Share Posted January 14, 2016 Great news! Quote Link to comment Share on other sites More sharing options...
stellaluna Posted January 15, 2016 Report Share Posted January 15, 2016 My heart soars for you! Quote Link to comment Share on other sites More sharing options...
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