dancer65 Posted December 26, 2015 Report Share Posted December 26, 2015 My Dr has just referred me to university college london . Just wondered if any one has attended this hospital any info would be gratefully received . Also roughly how long was the waiting list ? Many thanks Quote Link to comment Share on other sites More sharing options...
m@t Posted December 30, 2015 Report Share Posted December 30, 2015 I have been there, waiting list wasn't too long it was a month or so for the initial consult. Then they offer to put you up in their hotel whilst you under go testing over a couple of days. If you are flexible with time they can sometimes squeeze you in for the autonomic testing. I had a phone call the day after my initial consult offering testing the following day.Initial consult was at Royal Hospital for Integrated Medicine around the corner from the neurology and neurosurgery place.Where abouts are you based?Hope it goes well for you! Quote Link to comment Share on other sites More sharing options...
dancer65 Posted December 30, 2015 Author Report Share Posted December 30, 2015 Thanks for that information and well wishes I am based in mid Wales very rural so I would get the train I couldn't drive that far at the moment Quote Link to comment Share on other sites More sharing options...
corina Posted December 30, 2015 Report Share Posted December 30, 2015 Good luck dancer! Hope you will get some answers! Quote Link to comment Share on other sites More sharing options...
m@t Posted December 30, 2015 Report Share Posted December 30, 2015 It was a bit of a culture shock from my rural setting! I really do wish it was anywhere other than central London.Mind you I did make the crazy decision to drive there :-) Quote Link to comment Share on other sites More sharing options...
dancer65 Posted December 31, 2015 Author Report Share Posted December 31, 2015 Thanks corina! I hope this too will help me to move forwards whilst I have improved this last 12months I still cannot work full time and certain symptoms are there 24/7 M&t I lived in London for a good few years so know the nightmare driving there ! Did you find the appointment helpful, also if you were on meds did you have to come off them for appointment? Thanks again Quote Link to comment Share on other sites More sharing options...
m@t Posted December 31, 2015 Report Share Posted December 31, 2015 Ah you will be fine then, I've never lived in a town let alone a city! :-)I didn't find it that helpful if I'm honest but I'm not a classical presentation. I don't think they usually see 6ft3 stocky blokes...I wouldn't let my experience cloud your judgement though, they are the UK experts and do help a lot of people.They will instruct you on meds etc. The nursing staff and the chap who phones to arrange things are all top notch. Quote Link to comment Share on other sites More sharing options...
dancer65 Posted December 31, 2015 Author Report Share Posted December 31, 2015 Sorry to hear it wasn't that helpful,it can be hard to find that Dr who recognises what is going on and helps you move forwards , good luck to you too Quote Link to comment Share on other sites More sharing options...
m@t Posted December 31, 2015 Report Share Posted December 31, 2015 Dancer do you know what "read code" your GP has you flagged under on their conputer system?Have you had any contact with POTSUK? Quote Link to comment Share on other sites More sharing options...
dancer65 Posted January 1, 2016 Author Report Share Posted January 1, 2016 No don't even know what that is to be honest! I have been in contact with stars I had a phone conversation with a lady there but only been on website with postuk . Quote Link to comment Share on other sites More sharing options...
m@t Posted January 1, 2016 Report Share Posted January 1, 2016 Ah, happy new year to you!A read code is basically a diagnosis or box they put you in to. My GP is struggling and they have me listed under "Fatigue symptoms". I would be interested if you could ask yours next time you see them! Quote Link to comment Share on other sites More sharing options...
dancer65 Posted January 1, 2016 Author Report Share Posted January 1, 2016 Ok I will do , I am not due back for ages though only just had all my bloods checked and they were all ok as usual. I do know on my blood test sheet you give to the nurse it said chronic fatigue Quote Link to comment Share on other sites More sharing options...
dancer65 Posted January 1, 2016 Author Report Share Posted January 1, 2016 Oh happy new year too !! Quote Link to comment Share on other sites More sharing options...
m@t Posted January 1, 2016 Report Share Posted January 1, 2016 If you remember and could ask them when you next go that would be fantastic! :-) Quote Link to comment Share on other sites More sharing options...
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