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toomanyproblems

Qeeg Based Neurotraining For Pots

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ETA that's supposed to be qEEG in the subject.

Hi all,

New to this forum but not to POTS. I've had qEEG brain mapping and have been doing neuro training in the pain and mood centers of my frontal area for the past few months with excellent results. We're about to move to the back of my brain to work on the areas responsible for POTS symptoms, where my brain mapping showed very abnormal tracings. The specialist says she has had mixed results for POTS. Actually, she said something to the effect that she's had hit and miss results. I assume this is due to the heterogeneity of the condition. It either works for your kind of POTS or it doesn't. However, there is some scientific backing for POTS using this technique.

At any rate, I'm having this in the next few weeks. I was wondering if any here had tried it and if so what kind of results you saw.

Thanks for any help.

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I just participated in a study to see if neurofeedback improved sleep quality/quantity in EDS patients. It hasn't been published yet. My personal experience was that I did have improvement in my ability to fall asleep. I went from falling asleep at 3-4 am to falling asleep at 1-2am. This lasted until I had to go off all my meds for 2 weeks for testing and my mcas went crazy and my pain levels sky rocketed. I'm back to 3-4am. But, I would do the neurofeedback for this again if I could afford to do privately (which I can't rt now.)

I know that's not exactly your question but my guess is that neurofeedback isn't something many people have tried as it is different from biofeedback and not as widely available.

I say if you have had good results and it's not going to hurt anything, what's the downside??

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OK, thanks. Also, I see now where you had already said in your previous post that they're not the same - I must have glossed over that before (it's a big brain fog day for me too!).

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I say if you have had good results and it's not going to hurt anything, what's the downside??

The main downside in my case is it's an hour away, I do it three times a week when I'm not too dizzy to drive, and it's expensive. Insurance does cover it for some conditions but not POTS or CRPS. That may be changing in the future.

Here's a link that may be helpful:

http://www.qeeg.com/qeegfact.html

I'll look for actual studies and abstracts when I have more time.

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