SRDavis Posted August 11, 2015 Report Share Posted August 11, 2015 Hi! I am new to DINET and I have been reviewing the past posts on high altitude and how people respond to it. My background: I have been diagnosed with POTs for 1.5 years now (was sick for 3 years) and living in the south has been absolutely miserable. My official diagnosis is idiopathic pots, hypermobility, and small fiber neuropathy. No matter how much progress I make, the heat and humidity here ALWAYS set me back. This summer I was finally well enough to travel and went to stay with family in Colorado. They live at about 8,500 ft altitude which was obviously a huge difference from where I live at about 600 ft. I searched the forum before hand and saw many people have negative reactions to the higher altitude and really haven't seen where anyone has said symptoms actually improved with it. Well I found that my symptoms improved greatly. Not only did my blood pressure stay at normal level without having to take my midodrine, I slept better, was more active during the day, I wasn't overheating for once, and actually felt less foggy headed. Now I did not try my actual workout routine out there but I did take regular walks outdoors and was fine. Now my heart rate was higher but I was assuming I could bump up my beta blocker to counter that. I also doubled my water and salt intake to prevent dehydration with the drier air and seemed to be fine on that count too.I guess I am just curious if there is ANYONE else out there who is like me and has actually had a positive response/improvements while being in a higher altitude? I am planning ion trying to move out to Colorado before next summer and I am a bit worried that I might be missing something that could go wrong with my health being out there? My biggest issue I still struggle with is overheating and this was so much better out there I want to make sure I am not overlooking other things. Thanks for any advice or stories on this. Quote Link to comment Share on other sites More sharing options...
corina Posted August 12, 2015 Report Share Posted August 12, 2015 Hi SunnyD, welcome to DINET! That's great to hear you're doing so much better in Colorado! I hope you will be able to work things out and that a move will work well for you. Good luck! Quote Link to comment Share on other sites More sharing options...
ramakentesh Posted August 20, 2015 Report Share Posted August 20, 2015 Altitude changing symptoms is probably more patient reports than anything with a scientific basis. It seems everyone is very different, Quote Link to comment Share on other sites More sharing options...
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