Momof3boys Posted October 23, 2014 Report Share Posted October 23, 2014 Hi all. I have been prescribed 30 mg mestinon 3xdaily for 3 months now. I've only been taking it 2x daily most of the time, because honestly I forget the evening dose & didn't notice much of a difference anyway. Seemed to maybe help, but still pretty slow moving. Yesterday I tried doubling my dose to 60mg 2x daily & felt great! Better than I have in a long time. I usually put my meds into a pill box once a week. For some unknown reason I looked at my pill bottle this morning. The tablets are 60mg tablets, not 30 mg tablets. So I've actually been taking 60mg Bid, and yesterday I doubled to 120 mg bid, with an excellent response. This seems WAY higher than the typical dose for pots. I know everyone is different, but is anyone else taking, or know of anyone taking that high of a dose for pots? Makes me wonder if I should talk to my dr about an MG consult. I do have a call placed to my dr, but wanted some extra feed back from the people in the trenches so to speak.Thanks, Quote Link to comment Share on other sites More sharing options...
corina Posted October 23, 2014 Report Share Posted October 23, 2014 I'm not sure what Bid is just thought to let you know that I'm on 120mg mestinon 3 times per day and for me that is below the amount I am allowed to take. Quote Link to comment Share on other sites More sharing options...
taynben Posted October 23, 2014 Report Share Posted October 23, 2014 I take 60mg 3x's a day for a total of 180mg. I do remember my Dr mentioning to me that many people need to take at least that much to notice a difference and some need to take an even higher dose. I haven't been on it too long and haven't noticed too much of a difference yet, but am willing to see what happens. (Like you, I have a hard time remembering that third dose though!) Also, BID means twice a day for those wondering. Quote Link to comment Share on other sites More sharing options...
corina Posted October 24, 2014 Report Share Posted October 24, 2014 Thanks for explaining taynben! Quote Link to comment Share on other sites More sharing options...
ramakentesh Posted October 25, 2014 Report Share Posted October 25, 2014 If it works enjoy it. Signs of too much would be throat numbness and diaherra. Quote Link to comment Share on other sites More sharing options...
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