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Good News For Me And Bad News For Me (But I Already Knew The Bad News)


blueskies

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Because I had figured it out myself that at age 58 I was highly unlikely to recover from pots.

I saw my pots specialist last week, and he told me that tests had shown that I did not have mitral valve prolapse (as he had thought was the case, after the prior visit with him). Nor inherited the dialated cardiopathy that runs through the female line.my mother has it, all her sisters have it except one. So hopefully it will end with her generation.

He told me that tests showed I have a very good heart for a 50 year old and when I told him I was turning 59 this year he said 'even better' :). It is reassuring to know that i have a heart that is handling all the tachy I experience.

I must have looked a bit too celebratory, lol), because he quickly followed it up with the info that my pots was 'for life.' I was not surprised as I've dealt with it for a long time and had pretty much realized pots was not going away for me. I had just accepted it. Finalky. So him telling me that was, in a way, validating - not quite the word I was looking for but it will do.

blue

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Congratulations! To have confirmation that you have a healthy heart is always good news.

It must be a relief to know that your POTS symptoms are just that and are not related to, or having a negative impact on, your heart.

Sorry to hear you will likely have POTS for life (in the same boat here) but 'better the Devil you know' and all that! X

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Hi Blue

It's great to hear that you have a healthy heart but not so great that you are stuck with POTS. I wish research could it to the bottom of all of this strange illness. I suspect that POTS has more to do with a persons immune system but time will tell. At least you know what you are facing and know when to slow down to let your body recover.

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You know, I had a "touch" of mitral valve prolapse, heard by a couple of physicians, back when I first began with POTS. It actually disappeared and I think it is because now I hydrate much better. I think being low on fluid, for me, is what made it "active". I haven't had a doctor mention MVP in years through listening to heart sounds or imaging since then.

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