LastUnicornLady Posted May 6, 2014 Report Share Posted May 6, 2014 Hey, everyone. The day before yesterday, I experienced something really weird, and a little scary. I was sitting working on a crochet project, concentrating on the stitches, when all of a sudden, my eyes were moving rapidly side to side, uncontrollably. It lasted only about two to three seconds, and it wasn't the first time it has happened. It happens maybe once every few months.Does anyone else experience this, and is it something to be worried about? Do you have any ideas of what might cause it, and should I bring it up with my doctor? Thanks! Quote Link to comment Share on other sites More sharing options...
Katybug Posted May 6, 2014 Report Share Posted May 6, 2014 You may want to look up nystagmus. I have it and what you describe is very similar. Quote Link to comment Share on other sites More sharing options...
LastUnicornLady Posted May 7, 2014 Author Report Share Posted May 7, 2014 I actually just found that, and I think it's probably what it is. I just don't know if I need to be worried about it. Do you know what the cause of yours is? Quote Link to comment Share on other sites More sharing options...
Katybug Posted May 7, 2014 Report Share Posted May 7, 2014 The docs believe mine is being caused by the structural issues in my neck....discs and subluxed vertebrae pressing on my cord. We're hoping it's one of the symptoms that will go away with my surgery in June. My nystagmus only happens when my neck is in flexion or I am moving from neutral to flexion and vice versa. It coincides with what we see on the imaging as far as how the compression of my cord changes upon flexion. I have both side to side and rotary nystagmus. The side to side is fast movement but the rotary is a real trip. It is much slower and it makes it look like the world is wobbling in a circular motion. The rotary nystagmus mostly happens to me when I'm waking up....I must be sleeping in a position that causes the cord compression. I usually have to lay straight and try open and closing my eyes every few minutes until it stops. It can be nauseating. I at first thought it was some extreme form of vertigo but I realized I could feel a slight "around the world" movement of my eyeballs. Most nystagmus can be provoked during neurologic exams or ENG testing at the ENT/audiologists office. Mine is trickier to provoke because my neck has to be in just the right position (like when I'm looking down to read) to be provoked. A neurologist or an ENT would be the docs most likely to be able to help you with this if it is nystagmus. Quote Link to comment Share on other sites More sharing options...
dianne.fraser Posted May 7, 2014 Report Share Posted May 7, 2014 I've had the feeling of my eyes shivering from side to side - it only happens occasionally, during exacerbations of my illness. My eyes are not actually moving though - my field of vision is shivering because I'm having a small seizure. This might be something to take up with your doctor. Quote Link to comment Share on other sites More sharing options...
gertie Posted May 8, 2014 Report Share Posted May 8, 2014 Mine has been caused by Meniere's disease. Quote Link to comment Share on other sites More sharing options...
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