gertie Posted December 8, 2013 Report Share Posted December 8, 2013 This may not be an appropriate question for this forum but...does anyone know a message board for mcad or hyperhistaminemia? The only one I can find is the mastocytosis board & there is no activity there. thanks for any help. Quote Link to comment Share on other sites More sharing options...
jkoconne Posted December 8, 2013 Report Share Posted December 8, 2013 Hi Alica,I'd like to follow your post and hopefully someone knows. I started treatment for Mcad today! I havent been on this forum in a long time and was coming on to see how others have tolerated the treatment.Hope you find a forum! Quote Link to comment Share on other sites More sharing options...
Katybug Posted December 8, 2013 Report Share Posted December 8, 2013 The forum at ednf.org (which is actually for eds patients/family) has lots of activity regarding mcad. They also have "groups" that you can belong to nd I know mcad is one of those options. The forum at this site is called Inspire. Quote Link to comment Share on other sites More sharing options...
gertie Posted December 8, 2013 Author Report Share Posted December 8, 2013 jkoconne, I just read your post. I've been on a low histamine diet for a long time but I think there's more to my allergic reactions than that. Good luck! I love this forum. It has helped me a lot to have a place to go for support. Katybug, thanks very much. Quote Link to comment Share on other sites More sharing options...
castronovo112587 Posted December 9, 2013 Report Share Posted December 9, 2013 Hey guys can anyone tell me their symptoms of McAllen and the testing they did for diagnosis? I'm sorry but I do not know of a support group Quote Link to comment Share on other sites More sharing options...
castronovo112587 Posted December 9, 2013 Report Share Posted December 9, 2013 Sorry meant Mcad autocorrect lol Quote Link to comment Share on other sites More sharing options...
futurehope Posted December 9, 2013 Report Share Posted December 9, 2013 Alicia,When you said there is no activity there, are you referring to this board?http://mastcelldisorders.wallack.us/yabb/YaBB.plIf you are, I have always had someone respond to me after I posted. People on there may not be on the board as frequently as on here because they probably don't need to be, but, like I said, if I post something, I have gotten responses.So, if you are referring to the above BB, I suggest posting. Quote Link to comment Share on other sites More sharing options...
gertie Posted December 9, 2013 Author Report Share Posted December 9, 2013 futurehope, that's the website. Thanks very much. Quote Link to comment Share on other sites More sharing options...
gertie Posted December 10, 2013 Author Report Share Posted December 10, 2013 futurehope, I applied for forum membership by email as was suggested. Do you know how long it takes for them to respond? thanks. Quote Link to comment Share on other sites More sharing options...
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