Bambamjr2013 Posted October 11, 2013 Report Share Posted October 11, 2013 We'll in 2010 I was dealing with Dislocated ribs in my Upper back area Left side. Went to GP complaining of this issue. Was told it was a pulled muscle. We'll 8 months later I informed my GP again about my issue and finally did an MRI and discovered the slipped rib and was sent to Chiropracter and adjusted several times and that was over 25 visits and rib would not stay in place. We'll in 2011 I was in my Garage and I noticed my heart was beating out of my Chest when I stood up So I went to ER and was referred to A Cardiologist and was administered EKG, Monitors and Tilt Table test that confirmed my POTS. We'll I was then prescribed Bystolic 5 mg. And seemed to be doing alright with the Bystolic. So last summer I had a bad infected tooth and was prescribed Antibiotics for the Infection. After taking the Meds I started noticing my stomach would gurgle and I would get Headaches and Sweating. I informed my GP and he referred me to GI specialist and after a Upper EGD and Colonoscopy I was diagnosed with HPylori. Took the PrevPac for 14 days and took Stool Sample and Biopsy and was found to Eradicated. We'll I went to follow up visits and informed them that I still did not feel well and was sent to University of Louisville to see another Specialist and after him running several blood tests and me informing him of my ailments He diagnosed me with Spastic Colon and I'm so confused If it's POTS that can be the cause of all my issues? I wakeup with Crusty eyes and blurred vision and the veins in my eyes are becoming noticeable to I and My Wife. I wakeup with Headaches and just don't feel well. Should I request to see a Cardiologist and get more treatment for POTS? I'm just so confused and scared and want a better Quality of Life. I apologize for my rambling but I have never felt so bad in my Life. Any advice would be appreciated. Thanks Quote Link to comment Share on other sites More sharing options...
SarahA33 Posted October 12, 2013 Report Share Posted October 12, 2013 Hi,I wish I could provide more advice for what you are going through. I'm really sorry that you've not received relief. I know that feeling all too well!Some of the symptoms we share in common: I have daily headaches/migraines and they are just awful. I have a lot of blurred vision due to the migraines but I also have it in between the migraines so I tend to attribute it to my brain fog from the pots. I no longer experience GI symptoms, but for years I did. I dropped weight like crazy and the pain was pretty intense. I was put on Pentasa and Asacol and that seemed to work. I stopped the meds and am still doing well with the GI stuff. Migraines and heart rate still continue to be my biggest battle. How is your heart rate and bp now?Have you seen a specialist in dysautonomia/Pots as of yet? Best of luck to you. Quote Link to comment Share on other sites More sharing options...
Bambamjr2013 Posted October 12, 2013 Author Report Share Posted October 12, 2013 Thanks Sarah, I appreciate it. I'm just so discouraged with My GP. He has not taken the time to look at all my Diagnoses all together and it seems like I have to do all my resourcing myself. I think I will start with My Cardiologist Monday and setup a follow up. It's just scary feeling like your about to fallout all the time. Quote Link to comment Share on other sites More sharing options...
davecom Posted October 12, 2013 Report Share Posted October 12, 2013 Since you have an official diagnosis of POTS, if I were you my next step would be to find a doctor (cardiologist or neurologist usually) in your state that deals specifically with POTS (not a cardiologist who happens to have a couple patients who have it). He or she can put the pieces together for you. It's a specialized enough discipline that most doctors may be unlikely to give you meaningful insights beyond taking a beta blocker to slow your heart down. Quote Link to comment Share on other sites More sharing options...
Bambamjr2013 Posted October 12, 2013 Author Report Share Posted October 12, 2013 Thanks Dave. I appreciate it. God bless Quote Link to comment Share on other sites More sharing options...
corina Posted October 12, 2013 Report Share Posted October 12, 2013 Hi Bambam, welcome to the forum! It might be helpful to find yourself a specialist. Like others have mentioned s/he could put the pieces of your puzzle together and start treatment if necessary. Good luck! Quote Link to comment Share on other sites More sharing options...
Guest Alex Posted October 12, 2013 Report Share Posted October 12, 2013 Hi Bambamjr2013,sounds like you could benefit from the expertise and help of a dysautonomia specialist. In my non-medical opinion POTS can explain some of your symptoms, but a specialist should be able to get to the bottom of the problem.Have you checked dinet's list of physicians here to see if there is one in your area? Or if you're comfortable disclosing your location, perhaps you can start a new thread asking if someone can recommend a doctor.Best of luck! Quote Link to comment Share on other sites More sharing options...
Bambamjr2013 Posted October 12, 2013 Author Report Share Posted October 12, 2013 Thanks a lot I really appreciate your help. Glad I came to this forum. Quote Link to comment Share on other sites More sharing options...
looneymom Posted October 14, 2013 Report Share Posted October 14, 2013 Hi and welcome to the forum. So sorry to hear about what you are going through. I would seek out a doctor for a better diagnosis. There are so many things that can cause POTS and resemble it. It is possible you will need more than one doctor to help you with your health problem. Hang in there and feel free to ask questions.Rachel Quote Link to comment Share on other sites More sharing options...
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