Blood Pressure And Pots - 24Hr Readings

[andreak]

Im 18 and had POTS for around three years now. It came about after several years suffering with the chronic pain condition CRPS

I have just had a 24hr blood pressure monitor as although my POTS nurse isnt too worried about my BP my GP has raised concerns when issuing CRPS medication

The average readings I have are Daytime 168/115, overnight 108/70 and a 24hr average of 148/108

Having CRPS which is an autonomic problem Im well aware that things can return to normal whilst asleep.... for me dystonias resolve when asleep and resurface the minute I am awake so I would expect to have normal readings during sleep

Has anyone else with POTS had the 24hr monitor and how were their readings

I have requested the hourly breakdown as I was to demonstrate to my GP how things can fluctuate widely dependant on what I am doing and whether or not I have changed posture etc

The other thing I dont have at the moment is the heart rate readings but I do know in the day they can be extremely high, to the point at which exercise machines in my local gym switch off and give health warnings

If anyone can look at the readings and tell me what they mean I would be grateful as I have a two month wait to see my consultant

Many thanks

Alison

[bebe127]

Alison,

I'm sorry that I cannot answer your question, but I am curious as to what type of dr. prescribed a 24-hour blood pressure monitor?

I do hope there is someone on here that can help you decipher your results.

Be well,

Bebe

[andreak]

POTS is looked after under a Cardiology consultant and I am seen by his nurse practitioner who has a specialism in POTS. My GP surgery had raised concerns that my blood pressure readings had been creeping gradually higher since the onset of POTS. Back in the early days I could faint 25 times a day but that doesnt happen now and the BP readings have risen from 120/80 to 144/121 at the last visit so he asked that I mention it at my POTS appointment

The person I saw said the results werent a concern as may have been a one off reading during the day but I have generally been feeling rubbish lately so I mentioned this and also that my GP didnt want to prescribe medication with such a high BP

It was her who organised for my GP surgery to carry out the 24hr monitor

I am wondering if I have the hyperadrenic form of POTS with these high readings, plus my pain responses are based on fight or flight and I do tend to be overly sensitive and hyper needing tobe kept occupied one minute then exhaused and down the next and reading posts it seems this can be a pattern in this type

Any advice would be welcome as I dont see the nurse at the hospital for two months

Alison x

[bebe127]

I too have wondered if I have the hyper type of POTS as I began this dreaded disorder with a bit of hypertension. I too, seem to be hyper sensitive and do much better if I'm doing something as long as it's at home, I don't go out much and don't drive unless absolutely necessary. Also, during my TTT my bp rose. I've only fainted once in my life when I was in my teens, it hasn't happened since (I'm 43 now) thank goodness. My problem is that I cannot find a dr. in my area that treats POTS per se. I've been getting treatment through my GP and am on Metorolol and Xanax. I would say that I've improved ever so slightly. My vitals are like a rollercoaster though and I still feel rather poopy most days. I has of late begun to exercise a bit and I do feel a bit better. I do Wii Fit Yoga, play Wii Sports with the kids and do 30-40 minutes of walking either with daughter or son a few times a week. I've only just begun, but I do seem to see a difference.

I do take my readings every am and pm and record any symptoms and feelings on a chart that I made on Word. You can find a longer version on the blog Lethargicsmiles. It has been helpful to know and be able to look back and see what my readings were and how I was feeling to see if there is any correlation. Hopefully, this might be helpful to a dr., if I ever find one to help me

Good to hear that you have some specialists on board and are working to help you out with this. Sorry, I don't really have any advice. When I used to get high blood pressure (although not quite as high as yours) the only thing that helped me was to lay down and rest and try to relax. Also, I find that with me, I was checking my vitals way too much and that was causing me more anxiety which I could only assume would be somewhat of a culprit in my high bp readings at the time.

I was curious about the bp monitor because my husband has been feeling funky and having issues with high bp (which he has never had issues with before). We are going to the GP Friday to go over blood results. If there is nothing found, I want to suggest that maybe she prescribe the bp monitor for him just to be on the safe side. We'll see how that goes as she was not receptive last week with me when I asked her if we could check into some things concerning my POTS, ie: trying to figure out what type I have or if I have some type of autoimmune issue as well. We'll see how it goes.

Hope you get some answers and relief soon