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Posted

Has anyone on this board seen Dr. Steven J. Shook at the Cleveland Clinic? I was told that he is a neurologist there that sees patients with autonomic dysfunction. I haven't been able to find any info about him on this board or even much online but his schedule is the only one that would line up with Dr. Jaeger's schedule. I saw a different neurologist there during my first visit but since I had to see whoever had an opening which ended up being one that specialized in treating MD and MS so they weren't much help. Any input would be appreciated.

Posted

Sorry, I haven't heard of him. I just got back from CC, yesterday. Almost every doctor I have seen there (3 visits so far) has been very kind. I just have yet to get answers. I guess I can look at the fact that many things have been crossed off the list.

I have only heard of one negative experience with one neurologist from a friend and it was not the name you mentioned. If you want info about that one, just pm me.

I hope you have a great experience. I did see Dr. Jager and he was really nice and felt like he really listened, but after seeing him and having the tests in his department I have not been able to contact him or know what he would like to do next. I guess he is busy and the nurses guard him because of it. I did get a letter with the results, but I feel like it needs to be explained further. I am also seeing a internal medicine doctors, she is part of what is called National Consult. They kind of keep your case together and talk to all the doctors you see.

Just frustrating I am really having so bad problems and it is the hurry up and wait. They took more blood (nine vials) and reviewing all my old tests on discs. But I feel like I am struggling to not get worse with no help. :(

Someone on this board did say that CC is a good place to get diagnosis but then you take and get treated elsewhere. Not sure if this is true or not.

I will say I am frustrated on some suggestions. I have been told to salt load, even though I have high bp. Also to use the compression socks, even though I told them the one time I tried them my bp skyrocketed (one hyper pots patient told me they do not work for hyper pots). Oh and a nurse put the wrong medication in so they thought I was taking a water pill and I am not! They also want me to go off one medication, even though I told them this is the one which seems to be keeping the bp lower. Sigh...

That saying at least they are still testing

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