k&ajsmom Posted June 2, 2013 Report Share Posted June 2, 2013 Hi everyone. So ive been pushing back HARD against my symptoms. Ive been working part time but since my job is physically demanding its very hard and exhausts me and now i have a severe bundle of nerves pinched and every other symptom persists and im struggling to hang on...oy but anyways im finnally getting ready to see the autonaumic specialist/ neurologist that ive been waiting to see for seven months and im getting nervous.My primary care says last week dont get my hopes up and stop escaping my problems with my condition and i told him i cant handle the heat so his answer was turn off the ac and acclamate....well doc...my only problem that i cant handle is my condition ....? 29 years of this and im just sopposeed to suck it up..wish i would have thought of that already *eye roll*Anyways sorry for ranting now onto my question..lol what in the world do i ask this doctor? Ive already failed 10+ ttt's in my life ive been diagnosed ncs, and pots, so what are some key tests to ask for? Autoimmune? Mast cell? Eds? Ugh im over my head on whether a neurologist even does these things? Help please..i dont wanna blank stare when i get there after waiting seven months. =p im gonna list all my symptoms over the years and progression but i dont know what else to push at him?????!!!!! Thanks for any advice! Quote Link to comment Share on other sites More sharing options...
HopeSprings Posted June 2, 2013 Report Share Posted June 2, 2013 I've heard good things about this Doctor. He's on my radar as one to see if I'm ever in a position to travel. Maybe he'll know what to do instead of you having to ask - would be nice for a change. If there are specific ideas you have I'd bring them up though. Let us know what happens and hope it's a positive experience! Quote Link to comment Share on other sites More sharing options...
k&ajsmom Posted June 2, 2013 Author Report Share Posted June 2, 2013 Thanks for ur response Naomi,Ive heard good and bad things so im nervous. I know its different for everyone so "crossing my fingers" i will keep u guys posted and if u ever decide to come see him hes only 20 minutes from me and i have a spare room for anyone that needs it =) even though i had to wait 7 months i know im very lucky he is so close (assuming things go well lol) thx again Quote Link to comment Share on other sites More sharing options...
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