A Simple Explanation

[Altruism]

I saw my cardiologist after doing MILLIONS of tests, MRIs, CT scans, cathecholamines, 24 hour sodium urines, standing/supine NE, TTT, autonomic testing, etc... All but the TTT came back normal. So, my new doctor has this very simple theory - why bother finding the cause and keep testing? I have POTS, my results are ok. It's trauma-induced. My body is super sensitive to the otherwise normal levels of catecholamines that I have. Could this be the answer? If calming down our ANS helps it adjust to the cathecolamine levels, then POTS should get better... Right?

[Angela]

were you on meds during the testing? your dr. has the same theory as mine i think, he calls my condition idiopathic pots. therefore my pots is an idiot. on that note, i will figure out how to overcome that bastard since i am not an idiot!

[Altruism]

Nope, no meds.

But it makes sense... if benzos, herbs or SSRIs can calm our ANS down, then we won't have an exaggerated response to normal stimuli...

Right?

[HopeSprings]

he calls my condition idiopathic pots. therefore my pots is an idiot.

LOL!

Altruism - some people find the underlying cause of the POTS, but many don't. I think it's up to the individual to decide whether to keep hunting or just accept the situation and find a way to manage it. I've struggled with this myself and every so often, I think WHY am I doing this... all these Doctors, all these tests and I'm really getting no closer to answers. At the same time, I find it incredibly difficult to accept the situation as is. As far as medication, what should work in theory, doesn't always. I think it's just trial and error, until you find the right one/ones for you.