Rachel Cox Posted February 24, 2013 Report Share Posted February 24, 2013 Helllo. I just had gynae surgery under general anaesthetic. I was discharged today after four days in hsoptal. I have been really struggling to control the pain but my most distressing issue is these giant fasiculations. I am twitching all over and it is rocking my whole body. I can't sleep and I can't rest, it is hurting my op site because I am moving so much. I can't stop it. typing is a nightmare. Anyone else? we are trying to decide if i need to head back to emergency. your opinions would be so welcome. Quote Link to comment Share on other sites More sharing options...
Rachel Cox Posted February 24, 2013 Author Report Share Posted February 24, 2013 PS. they have me on other drugs, so including my usual mestinon an domperdone i am taking gabapentin and oxynorm, augmentin and i can't rmember teh others. Quote Link to comment Share on other sites More sharing options...
Angela Posted February 24, 2013 Report Share Posted February 24, 2013 hey you, if it's a new symptom, all the body convulsions and stuff then I guess I would be off to the hospital! check your vitals, are they normal for you or off? I can tell that the pain/painkillers or whatever is throwing u off so you have to figure out which/what it is and why! Do what you feel you need to do, your body/mind isn't supposed to lie but sometimes it does with pots i guess:( Quote Link to comment Share on other sites More sharing options...
corina Posted February 24, 2013 Report Share Posted February 24, 2013 Rachel, I'm with Angela. When you feel uncomfortable about it just check with your hospital. I'm sure they wouldnt mind (won't blow you off). Yoiu could also call them and leave it to them to decide whether they want to see you or not.Hope you'll feel better soon! Quote Link to comment Share on other sites More sharing options...
anna Posted February 24, 2013 Report Share Posted February 24, 2013 You really need to get back to the Dr.'s as you may also be reacting or withdrawing from one of the meds used for your op. Quote Link to comment Share on other sites More sharing options...
arizona girl Posted February 24, 2013 Report Share Posted February 24, 2013 A yah, that's not normal. Back to the hospital or doctors asap. Let them know your concerned these spasms are going to tear open your stitches. If you were in for a couple of days for the surgery you probably had a hospitalist doctor assigned you that over saw your care. Get that docs name and call them. They would have come into to check on you in between your surgeons visit. Quote Link to comment Share on other sites More sharing options...
Canadiangirl73 Posted February 24, 2013 Report Share Posted February 24, 2013 Hi Rachel,I'm so sorry you're going through this. I agree with all the others. You should get checked out. Hope things get better soon. Quote Link to comment Share on other sites More sharing options...
Rachel Cox Posted February 24, 2013 Author Report Share Posted February 24, 2013 Thank you! AS it happens, hubby thought I should go back in and wouldn't let me wait to see what my 'forum buddies' thought! (Truly, I was spasming and pressing refresh, waiting for a response! bahahaha! Just goes to show how much I value the opinions of others who 'get it'. I didn't want to overreact). So we called the ward and they said 'get back to emergency, now.' So I did. Was transferred up to the ward (boy that is a fast track way in) and they told me that my op site and bladder have two different types of infection. IV antibiotics, some dressings to take home and a discharge this morning. I am happy to be home and feeling so much better. It was pretty scary because I have lost my ability to pee and poop before (this time I had a suprapubic catheter+bag as backup) but my bowel gave out completely and the pain was so intense. The doctor thought the shaking/spasms/fasiculations were a reaction to the pain and the void a reaction to the wrong antibiotics. I certainly feel different after a night on the right ones. I can't help but thinking though that the fasciculations, which were always accompanied by other sympathetic nerve over-actions must be due to the anaesthetic drugs. I kept asking if I should keep taking my pyridostygmine because I thought there was an interaction but they just didn't know. They kept saying 'well, we knew you were different when you came in, it's probably just more autonomic dysfunction. Perhaps, but it is the OTHER way to how I usually experience it. I just thought it must somehow be connected. You guys know how it is though, I shall have to wait to talk to the specialist about it some weeks from now. :-)Thanks for your lovely responses!Rach Quote Link to comment Share on other sites More sharing options...
corina Posted February 25, 2013 Report Share Posted February 25, 2013 Glad to hear you went back and are doing better now Rachel! Your husband was right to call and take you in. Esp. as we're no doctors so we can't help you from our sides of the computer (and if we were doctors we wouldn't be allowed to advice you here!)Hope you'll continue to get better! Quote Link to comment Share on other sites More sharing options...
Angela Posted February 26, 2013 Report Share Posted February 26, 2013 yeah, i am happy that you went in! listen to your instincts, even if we think they are skewed! pots doesn't make us stupid, ya know and I am happy when our instincts can still show credibility. Quote Link to comment Share on other sites More sharing options...
Rachel Cox Posted March 3, 2013 Author Report Share Posted March 3, 2013 Oh dear. Ended up back in again after the last post. This time they kept me in for three more days and by the time I was discharged I felt much more normal. Sometimes it really ***** when you feel horrendous and you have to explain through the worst. I had a couple of kind of 'fits' (not sure what to call them) where my eyes ran rivers, my trunk only sweated rivers, my saliva glands went crazy, I was tremoring, my eyes going every which way and pain like I have never, ever experienced in my abdomen. It was so bad my hubby called the ambulance and they took me in. I am so glad the worst seems to be over. I am sure my body went into protest over the anaesthetic drugs but no one at the hospital was able to comment on that. It is very very nice to be home again and feeling incrementally better each day. Thanks for your supportive comments! Instincts should always be listened to. Quote Link to comment Share on other sites More sharing options...
corina Posted March 3, 2013 Report Share Posted March 3, 2013 Wow Rachel you really had a hard time. Glad they admitted you again to take care of you! Hope recovery will go smoothly now! I do very bad with gen an. as well. That doesn't make life any easier, does it?! Quote Link to comment Share on other sites More sharing options...
anna Posted March 3, 2013 Report Share Posted March 3, 2013 I am glad you are back home and feeling a bit better, you have been through it rather, take care now ok. Quote Link to comment Share on other sites More sharing options...
Rachel Cox Posted March 3, 2013 Author Report Share Posted March 3, 2013 Corina, they were going to do my op with an epidural and sedation rather than a full GA, but the anaesthetist had a chat with me. She said that they deal with dysautonomia in other patients as a matter of course (people with parkinsons and MS etc) and that she knew how to look after me and keep me safe. I preferred the idea of not being awake, but I will know better for next time. Apparently everything was normal during surgery, they paced my pacemaker to 80 and nothing weird happened at all. It was afterward that I struggled!It is actually a blessed relief to be in a situation where I am being told to rest. If the expectations of me were like this all the time, life would sure be easier to handle. We have a temporary nanny here, doing the driving and cooking and after school activities and my husband said it was a shock to see how much energy she has and how much she can get done in a short time. He said it made him realise how sick I actually am. So that is good! He is a wonderful hubby but I think we have been running our house without adjusting to the changes in my ability to do things, until now. Looks like we will get an aupair once the nanny has gone, so that we can continue the rate of productivity the nanny has introduced! It will be nice for the kids to have someone to 'housekeep' and still have me to be their mummy. Meanwhile, I am lying down and watching the world go by outside the window. It is very peaceful here today. Thanks you guys for your loveliness. Quote Link to comment Share on other sites More sharing options...
corina Posted March 4, 2013 Report Share Posted March 4, 2013 it's quite difficult to watch the world go by, I know the feeling! I'm glad you shared that your anaesthetist talked you into the gen.an. as I most likely will have to have surgery on an herniated disc and I really really will insist on doing that with an epidural. Hearing your story I won't let them even try to persuade me!!!Although general anaesthetics isn't a no go for everyone with dysautonomia it is for me (has always been since childhood) so my doc and I decided to only have it when things are really really serious (as in life threatening).Hope being able to rest will help you recover quickly (or at least gets you back to your base soon ) Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You can post now and register later. If you have an account, sign in now to post with your account.