Gerrik1 Posted February 22, 2013 Report Share Posted February 22, 2013 I have had increase dizziness for almost 3 weeks now and was in the hospital for 9 days. I blacked out 5 times at the hospital and one time at Physical Therapy (were I was getting Vestibular Therapy) for dizziness. Since Blackout last week no more PT. The Balance Center is a AGH in Pittsburgh, PA. I will have to be off ALL medication except Thyriod, stomach, and cholesterol for 48 Hr. before testing. That is a lot of meds to be off for me!They will be doing a :Hearing TestRotary Chair Test Infrared Video Goggle Positional Test (IRV)And I will be seeing the MD after the tests to discuss the results. I was there 10 year ago when I was 1st diagnosed with POTS and has The Rotary Chair test and an Elctronystagmography(ENG) (warm & cool water into ears) I falled the ENG. At that time they said I had Vestibular Dysfunction in my ® ear. Gave me Antivert and sent me home.Now I feel worse than 10 years ago with the dizziness. I feel it's a flare-up of the POTS and the Vestibular. Dors anyone have any experience with any of this? Hoe do all of you deal with your dizziness? Quote Link to comment Share on other sites More sharing options...
ramakentesh Posted February 23, 2013 Report Share Posted February 23, 2013 I deal with my dizziness by trying to maintain blood volume and other POTS meds. Quote Link to comment Share on other sites More sharing options...
HopeSprings Posted February 23, 2013 Report Share Posted February 23, 2013 Sorry you're going through this. I struggle daily with dizziness too. We were talking in another thread about vestibular issues and POTS. I'm just gonna take a chance here... There is a researcher out of the University of Pittsburgh who has done work on the vestibular/autonomic connection. I wonder if the place you're going would be familiar with the work that has come out of his department (Dept. of Otolaryngology)? I know Pittsburgh is a big place, but you never know. To be blunt - can you ask them if they are aware of a connection between vestibular problems and autonomic nervous system dysfunction? I hope you get some answers out of your testing and find some relief. Info on that researcher:http://cnup.neurobio.pitt.edu/people/peopleDetail.aspx?uid=67http://neuroyates.com/research-interests.htmlhttp://www.jvr-web.org/Download/Feature_15_3.pdf Quote Link to comment Share on other sites More sharing options...
Gerrik1 Posted February 23, 2013 Author Report Share Posted February 23, 2013 My family Dr tried to get me into see Dr. Yates at the University of Pittsburgh but my insurrance would not allow it So secind choice is Dr. Chen At The Balance Center. These are the only 2 places in Pittsburgh for dizziness. I'll copy the information you posted and take it with me. Thanks! Quote Link to comment Share on other sites More sharing options...
HopeSprings Posted February 23, 2013 Report Share Posted February 23, 2013 Oh wow! I didn't realize he sees patients - too bad that didn't work out. The other guy might know something though. Thanks for doing that Gerri - let us know what happens! Quote Link to comment Share on other sites More sharing options...
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