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Tilt table


dawn

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I just saw a wonderful autonomic specialist at the Marsfield Clinic. I had the dreaded tilt table but instead of the usual faint my pulse only rose to 126 and my BP went from 106/62-160/106. This has never happened. Any ideas why. He said it was a negative tilt. My other 2 tilts were pulses around 180 and bp dropped. Hoping my body is changing and it's a good sign.

Dawn

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I don't understand how that is a negative tilt? I thought any standing hr 120 or over was an indication of POTS (even if it doesn't increase a full 30 bpm). I also had high bp on my positive TTT two years ago (along with hr increase of 80 bpm, bp went from 120/80 to 160/90!). POTS can present with either high or low bp on the TTT.

Were you on any meds when this test was done? Is the doctor saying that b/c this was "negative" you should change any treatment regime you are currently under?

Also, keep in mind that a TTT result is a snapshot of what is going on a particular day. I am certain that some days I would test positive and others not. So, I hope your doctor is also paying attention to your symptoms.

It is very possible that your body is changing. It does seem that POTS goes through an evolution over time for most people--for better or worse.

Katherine

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Hi Dawn,

I know the Inderal is long acting (12 hours) so when you did your TTT you were under the influence of that medication. Inderal slows the heart and lowers BP.

Usually when we do a TTT for diagnosis we are not to take any meds that affect BP and HR. If you need this TTT for pension I would ask to do another one without the meds.

Ernie

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Was the purpose of the TTT to determine whether these meds are effective? I agree with Ernie that generally a TTT is done without meds.

But I would still question the "negative" conclusion--since the results you describe appear to meet the criteria for POTS. Is there disagreement in the medical community about the definition of POTS? Was he looking for NCS? NMH? It does sound negative for those, but not for POTS--at least according to the standard definitions I have seen.

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