HopeSprings Posted October 15, 2012 Report Share Posted October 15, 2012 More young athletes with POTS. Why does this illness seem to have a preference for people at the peak of their health? http://www.commercialappeal.com/news/2012/oct/13/john-varlas-st-marys-soccer-star-devon-simms/http://tucsoncitizen.com/highschoolsports/2012/10/13/flagstaff-over-catalina-at-lions-den-plus-kelsey-keefes-story/ Quote Link to comment Share on other sites More sharing options...
Christy_D Posted October 15, 2012 Report Share Posted October 15, 2012 I can relate. My son played select soccer year round and select baseball in the spring and fall. It was a juggling act to make it to soccer practice and a baseball game in the same night. He was a very popular kid with tons of friends. That all came to a stop in the middle of his eighth grade year. At one point, I wished we could slow down and maybe take a summer off. So, be careful what you wish for. We not only slowed down, we came to a complete halt. Quote Link to comment Share on other sites More sharing options...
HopeSprings Posted October 16, 2012 Author Report Share Posted October 16, 2012 That stinks. Is he doing any better on the new protocol? Quote Link to comment Share on other sites More sharing options...
Christy_D Posted October 16, 2012 Report Share Posted October 16, 2012 No, no change yet. We go back to see Dr Afrin in 2 weeks. I'm guessing there will be yet another medicine change. Dr Afrin said it could be a long process and there is a long list of medications to try. Patience is definitely required. Quote Link to comment Share on other sites More sharing options...
HopeSprings Posted October 17, 2012 Author Report Share Posted October 17, 2012 Oh yes, based on what I've read from others it can be a long process of trial and error. I hope you get there soon. Quote Link to comment Share on other sites More sharing options...
sue1234 Posted October 17, 2012 Report Share Posted October 17, 2012 I wonder with it happening to very active people OR to people with EDS OR to people like me that have a history of bad bones, including the curvy spine, could it be that it is related to the brain/spine? I mean, a physical problem such as Chiari or cervical issues, or some other mechanism? I still have that cervical issue I want a specialist to answer for me. I have other issues I want ruled in/out in regards to POTS, but the physical/mechanical issue of spinal/brain compression upon standing is something I need to know. Quote Link to comment Share on other sites More sharing options...
NMPotsie Posted October 17, 2012 Report Share Posted October 17, 2012 Sue I've wondered about this as well; my neck has hurt at the base of my skull since I was dxd, though nothing appears abnormal on testing. It seems like the neck pain has totally emerged with the POTS, and it doesn't have anything to do with the ANS that I know of, so why does it hurt all the time? I wonder also if this is why yoga is helpful for some; it loosens all that up.My dr. recently prescribed massages every two weeks to help with my condition. I don't know if it's related, but I'll take that! Quote Link to comment Share on other sites More sharing options...
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