My Sister Has 80% Of The Mcas Symptoms

[hippychic258]

My sister has had weird symptoms for years but nothing life altering but lately she has been getting worse. I told her to research MCAS it sounded like it to me.And she has about 80% of all the symptoms. So I am wondering do I have that also, is that causing my Pots? I have had some of the symptoms of MCAS but nothing major I have more extreme pots symptoms, she has more extreme MCAS. Are both hereditary?

Thanks

[Guest Alex]

Hippychick,

if i were you I'd try to get an appointment with a good specialist in your area (see dinet's list) and go from there. I remember before being diagnosed how I'd google up my symptoms and reached all the wrong conclusions. It took a lot of "unlearning" once i was diagnosed, as I was so convinced that I had some horrible heart disease, and multiple sclerosis, I even went as far as thinking i have some rare form of cancer. The internet is a wonderful tool, but it doesn't really replace the skills of a well versed doctor.

Unfortunately I can not answer your questions, but I sure hope you'll find a good medical professional to help you figure out the proper treatment for you as well as for your sister.

Best of luck!

Alex

[anaphylaxing]

I have POTS and MCAS. Looking back probably had tendencies toward both but had a mega MCAS downward spiral and month later POTS started. Which causes which is not yet sorted out. They are just starting to recognize it. There are few MCAS experts and they or someone who can relay with them would be best to sort things out. The best are in Boston and South Carolina if you can travel or have your docs contact them.

You need a good doc to look at the whole picture, exclude other diagnoses, consider all of the symptoms and treat you and your sisters symptoms accordingly.

Good luck! More details on my blog if curious

Best thing is to ID early so you can prevent the downward spiral that most of us need to sort out what's happening