E246 Posted July 1, 2012 Report Share Posted July 1, 2012 I probably have EDSIII and need to look into it a bit more - but - have those of you who have this found HRT improves it?Given that oestrogen helps with collagen and so should help tighten up the blood return etc - has this been anyones experience.I first started 7 years ago with intermittent symptoms of pots but was on hrt - then came of it and within 2 months had full blown pots and have not had a day without it.Sometimes I wonder whether if I was to resume the HRT whether I might feel better.However the progesterone part of the medication was not always easy so I took it every 2 months.I am 55Thanks Quote Link to comment Share on other sites More sharing options...
peregrine Posted July 1, 2012 Report Share Posted July 1, 2012 Not sure - I have hypermobile joints (relevance depends on whether you go with the "hypermobility syndrome == mild-normal EDS-III), but was unable to tolerate HRT (Premarin, then Vagifem) because I get morning sickness on estrogen. Keep us posted! Quote Link to comment Share on other sites More sharing options...
issie Posted July 2, 2012 Report Share Posted July 2, 2012 I had uncovered something awhile back that explained my inability to tolerate pogesterone - but, can't remember tonight - having brain fog. Will see if I can find it tomorrow. But, I use estriol bioidentical transdermal gel and Red Clover for hormone support - also a product called EstroSense. It keeps me pretty balanced as far as hormones go and I had a complete hysterectomy when I was 36. I'm not sure that it has made that much difference with POTS in relationship to it and EDS. But, I do know I need to use the gel at least once a week and use the supplements daily.Issie Quote Link to comment Share on other sites More sharing options...
Chaos Posted July 2, 2012 Report Share Posted July 2, 2012 I use an estrogen patch (started after hysterectomy 4 years ago) which has been helpful but I can't say that I've noticed it helping with my EDS/POTS issues. Like Issie, I could never tolerate progesterone either. Hard to say how much it's helping with my POTS stuff since I started the patch before I was diagnosed with POTS. I still have lots of days in the POTS hole although maybe it would be worse if I wasn't on it? Asked my doc about stopping it but she was adamant that it would make things worse so wanted me to continue with it. Quote Link to comment Share on other sites More sharing options...
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