RunningWild Posted March 29, 2012 Report Share Posted March 29, 2012 Before POTS, I was a distance runner... working my way up to be able to run a full marathon. The months before the onset of POTS, I ran my first half marathon and it was one of the happiest/proudest moments of my life.But since then, I've barely made it back to running 3.1 miles(5k), and even then, I feel totally horrible.I am about to start taking Inderal, and my neurologist who is also a runner told me straight up "you're a runner... running is never going to be easy for you again once you start the beta blockers"...crap!I need the running as a form of stress/anxiety release, but I've found that with the increasing exercise intolerance, it has only been adding to my stress.Anyone run before POTS, and then make it back to that place? Quote Link to comment Share on other sites More sharing options...
jangle Posted March 29, 2012 Report Share Posted March 29, 2012 Runningwild there was a thread recently about a woman participating in an ironman that also mentioned she runs marathons. Quote Link to comment Share on other sites More sharing options...
MomtoGiuliana Posted March 29, 2012 Report Share Posted March 29, 2012 ...and takes a beta blocker as I recall. Quote Link to comment Share on other sites More sharing options...
RunningWild Posted March 29, 2012 Author Report Share Posted March 29, 2012 Yeah, I read that- but everyone reacts to it as miraculous. I want to know if it can be expected for more than just some of us. Quote Link to comment Share on other sites More sharing options...
MomtoGiuliana Posted March 29, 2012 Report Share Posted March 29, 2012 Many people rebound significantly from POTS and she is probably one of them. But it can take time. I think the average person diagnosed with POTS can expect significant improvement. this is according to my doctor who is a specialist in autonomic dysfunction, and according to any of the literature out there. You have much reason to be hopeful. Keep in mind that users of DINET do tend to represent the more ill patients--those who recover generally don't stay on support forums. Quote Link to comment Share on other sites More sharing options...
RunningWild Posted March 29, 2012 Author Report Share Posted March 29, 2012 Yeah I can understand that.I'm not a very patient person. haha. Quote Link to comment Share on other sites More sharing options...
Tuesday Posted March 29, 2012 Report Share Posted March 29, 2012 I play roller derby, and I run, and I just completed Tough Mudder (12 miles + obstacles) last month. I was not able to tolerate beta blockers, and there is no way I could have run while I was on them. Maybe you can find another combination of meds that will help your symptoms? Between midodrine and florinef I have been able to find a balance that works for me most of the time (I still have crashes and flares where I feel bad, it's just less often).Edited to add: I was never very athletic early in life, and I only started all of this after I was diagnosed. So, I think it's definitely possible. You may not really be able to plan your training the way you want, and you may have to take advantage of days when you feel less awful than others, and take breaks when you don't want to, but I don't think you have to give up on it. Quote Link to comment Share on other sites More sharing options...
RunningWild Posted March 29, 2012 Author Report Share Posted March 29, 2012 I didn't tolerate midodrine, florinef, gabapentin, etc. Beta blockers and maybe some form of SSRI are my next option...I know that a lot of people work around the bad days, i just feel like I have more bad than good. I guess we'll just keep workin at it. Quote Link to comment Share on other sites More sharing options...
Syd Posted March 29, 2012 Report Share Posted March 29, 2012 I've only just started running on the BB's, but I was able to go from no exercise at all(except from max half an hour walking a day) to do a 5k non-stop on my second run. I did have some symptoms afterwards, but not the fatigue (without the BB's I would have been curled up on the floor). Although I definitely had an easier time running pre-pots, I'm doing a LOT better running on BB's than I did off them. Unmedicated, I can hit 190bpm walking, so it it amazing to be able to run with a pulse of 160 now. My body/legs feels heavier than without the BB's, but I don't get shortness of breath until I'm actually giving some effort, and that makes running a lot easier. However, although my bp is extremely low, it does rise when it's supposed to, so I don't pass out. My guess is, that if your lucky and the BB's help you overall, they will also help your running - but then again I'm no doctor... Quote Link to comment Share on other sites More sharing options...
anaphylaxing Posted March 29, 2012 Report Share Posted March 29, 2012 I did halfs before too but now struggle with walking it's been ten months but i'm hoping i'll run again Quote Link to comment Share on other sites More sharing options...
mully2014 Posted March 29, 2012 Report Share Posted March 29, 2012 I miss running so much! I love it and it has been so hard to not be able to anymore... now I have days where I'm lucky if I can walk to the kitchen without feeling like I'm gonna collapse. I'm hoping that one day I will get to run again... I know that it won't ever be the same probably but I still miss the feeling of accomplishment that you can only get with running. Quote Link to comment Share on other sites More sharing options...
ramakentesh Posted March 30, 2012 Report Share Posted March 30, 2012 Yes but it may take a while. I wouldnt fear exercise. Quote Link to comment Share on other sites More sharing options...
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