I have most of the common POTS symptoms(been sick for 10 years, onset as a teenager, but realized what was going on a year ago), except for fainting and dizziness (my blood pressure, while low, does not drop when I stand up). I've been to Queen's Square in London where they say they suspect I have POTS caused by hyper mobility, and they did very quick measurements lying and standing (just did the measurements as soon as I was lying down and when I had just stood up) that showed a 50 or so HR increase. However, the waiting list for proper testing at Queen's Square is forever, and I need a proper diagnosis to explain to my school/work what's going on. My GP did a poor man's tilt where my HR went from 80 to 144 after three minutes, and when I check myself it usually goes from 50/60's to 110-130 and stays up for the 10 minutes. Anyway, I finally got a tilt test at another hospital to confirm the diagnosis, and although I don't have the numbers yet, my HR went up around 40 bpm and stayed up for the 10 minutes the test lasted, BP was normal. However, I didn't feel very ill during the test, I almost never feel ok because of my constant symptoms (mainly fatigue, pain and palpitations) but I can't say I got much worse during the test. Because of this the doctor was hesitant about giving me a POTS diagnosis, and mentioned that the Mayo clinic(I think that's what it was) recommended not giving a diagnosis when the tilt is symptomless. Now, I can understand that, but I usually do ok standing up(except when the HR increase is higher than it was on the tilt), and get worse the more I do. I can run and do quite well on endurance tests, but I get very ill afterwards, sometimes for days or weeks. I've monitored my HR with a pulse watch(and have also had a holter, at yet another hospital, that showed sinus tachy up to 190 during the day when I was active, but not exercising), so I'm pretty confident that my HR is a big part of problem because it's usually much higher when I'm feeling ill. So I was wondering if anyone knew what the doctors at Mayo(if that's where it is) do about tilts that are positive for POTS (30bpm HR increase or more) but otherwise symptom free, when the patient has a history that seem to indicate POTS or at least exercise intolerance due to tachycardia ... ? Secondly, I can do a few of the hyper mobility maneuvers, putting my palms to the floor and touching my thumbs to my wrists and I do get sports injuries easily, but could hyper mobility be the cause of my suspected POTS even if I don't have PB swings? The doctor at Queen's square said yes, but I don't understand how that would work... I just started beta blockers(was off them for the tilt) and they have helped. The doctor that did the tilt said that my nervous system probably was over sensitive, and I guess would mean hyper-POTS... So apparently I have symptoms of both hyper mobility and hyper-POTS, but I have no idea which it actually could be... Sorry about the rant, but I won't get to see a specialist for a while and I need to convince my GP to give me a diagnosis off of the tilt results. Any input would be greatly appreciated:)