ramakentesh Posted March 15, 2012 Report Share Posted March 15, 2012 In EDS and POTS - a good response:http://theeyedocblog.com/2011/02/09/update-on-ehlers-danlos-syndrome-and-ccsvi/ Quote Link to comment Share on other sites More sharing options...
issie Posted March 15, 2012 Report Share Posted March 15, 2012 Yeah, I've read her stuff. She also participates in another forum regularly. She has some pretty good ideas and practices it on herself. I mentioned her to the POTS neuro at Mayo and gave him a copy of her theories - he didn't subscribe to them though. So, not thinking that will go any further for us with EDS that see Dr. G. But, he is aware of her and what she thinks. I just sort of forgot about it all - but, thanks for reminding me of it. I'll have to try to find that forum she was on too - I was reading it about a month ago. Thanks for looking into it for us Rama.Issie Quote Link to comment Share on other sites More sharing options...
ramakentesh Posted March 15, 2012 Author Report Share Posted March 15, 2012 I was reading about CCSVI a while back and thought someone might be interested. Quote Link to comment Share on other sites More sharing options...
HopeSprings Posted March 15, 2012 Report Share Posted March 15, 2012 How do they look for this? MRA or something else? Quote Link to comment Share on other sites More sharing options...
Christy_D Posted March 15, 2012 Report Share Posted March 15, 2012 Dr Diana also has a website: prettyill.com Quote Link to comment Share on other sites More sharing options...
issie Posted May 10, 2012 Report Share Posted May 10, 2012 Info for us POTS/EDS people - this could be an issue. Her new book part 2 is out and goes into more details about this. Interesting ideas.Issie Quote Link to comment Share on other sites More sharing options...
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