purplefocus Posted February 12, 2005 Report Share Posted February 12, 2005 Hey everybody, I finally kept my appt. with the MVP and Dyautonomia clinic my doctor had referred me to. I think I had cancelled 3 times. I did find out some things that were helpful but not really any more information that we already have here. Here is what they did.........I had to answer an 164 questionaire. It ranged from parents history to if you had been sexually abused................from a to z. I couldn't see how alot of this would help but I did it anyway. The had informed me to expect to be there 2 to 4 hours. Let me tell you what they did. First they did an echocardiagram....then another tilt table test (it was nothing like the previous one I had,I did lay on the tilt table but this one lasted maybe 3 minutes, she stood me up checked my blood pressure, laid me down, checked my blood pressure and then I got up) Then I had to get on the tread mill and put the breathing piece in my mouth while I had a nose clip on and was hooked up to several wires. Guys, I knew I had deconditioned over the past year and half but I had no clue to how much............my O2 sats dropped down to 52, you like this to be 100. Well after I finally got off that contraption and realized I was not gonna die then I had to go talk to the doctor with all my new found results. I do have to admit it was nice to talk to someone that when she heard the word dysautonomia she didn't say "What?". She reviewed the medication I was on and adjusted them alittle, nothing new just a little adjusting. Told me how important it was to get off my butt and start moving and gave me quiet a strick little regimen to get started reconditioning myself. Something I think I actually can do. We talked about the symptoms I was having and then I left. I was a little disappointed. I guess I went in hoping for a miracle drug. I think the only thing I got from my visit was a pep talk to exercise. Oh well guys I just wanted to share this with ya. Oh yea, she wants to see my in 6 weeks to see how I am doing? Don't know if I will go or not . Paige Quote Link to comment Share on other sites More sharing options...
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