ramakentesh Posted February 15, 2012 Report Share Posted February 15, 2012 sorry to go poll crazy on you folks again but this one got me interested after reading POTSgrrl's website and blog.thanks for participating. Quote Link to comment Share on other sites More sharing options...
McBlonde Posted February 15, 2012 Report Share Posted February 15, 2012 Ah, do you have the link to her blog? I'd like to read! Quote Link to comment Share on other sites More sharing options...
goodnuff77 Posted February 15, 2012 Report Share Posted February 15, 2012 As I've written before found iv helpful on ER visits. So having so many reactions to the normal meds my Dr's decided to have a port placed for me. Been doing Iv's daily for a little over a year. It helps somewhat but it's not a cure and I still deal with daily symptoms. Quote Link to comment Share on other sites More sharing options...
issie Posted February 15, 2012 Report Share Posted February 15, 2012 I know I've felt better with them. But, have only had a few mostly with surgeries and the one time in the ER. Not something that is offered very much and they think you're crazy for asking for it. When I went to the ER, practically had to beg for it. And with reluctance was given one and I felt much better. But, I don't think the benefits last very long. Not a long term solution. It doesn't fix whatever the dysfunction is - that is causing the need for it in the first place. Quote Link to comment Share on other sites More sharing options...
Clairefmartin Posted February 15, 2012 Report Share Posted February 15, 2012 Ah, do you have the link to her blog? I'd like to read!Its www.POTSgrrl.blogspot.com - Lauren is my blogging buddy Great info on there.Rama - I feel like you need a third option: Recieved IV therapy and have good longer term results - or something of that nature. Some people I chat with get IV infusions once a week and do well on it.Thanks!Claire Quote Link to comment Share on other sites More sharing options...
Elfie Posted February 15, 2012 Report Share Posted February 15, 2012 What I would like to know is if after "x" many treatments (of course "x" will differ from person to person) if IV saline loses it's effectiveness to "treat" symptoms? I've seen some remote mention of it, but can't understand how that would work-- especially if it is working because it increases hydration and blood volume-- I can't imagine your body getting used to higher (more normal) levels of hydration and blood volume and then returning to POTSy symptoms, of course things aren't always that simple. I know IV saline only lasts for "x" amount of days or hours for some people, but a limit on the number of times your body will tolerate it as a treatment seems weird. Quote Link to comment Share on other sites More sharing options...
Freaked Posted June 28, 2013 Report Share Posted June 28, 2013 I've found saline ivs really helpful at times when I've felt really bad. Some docs have offered it, some have looked at me strangely when I asked but were like '...sure', and some have been like 'well I don't see the point. Just drink some water.' Sigh. Quote Link to comment Share on other sites More sharing options...
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